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Darcy

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@darcy424

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    Darcy replied to the topic When should you start antifibrotics? in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 month ago

    Thanks for the advice Marianne. I think it is good advice to start the medicine soon even though I don’t have much in the way of symptoms yet. But I guess that is the point, right?

    Darcy

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    Darcy replied to the topic When should you start antifibrotics? in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 month, 2 weeks ago

    Michael, you hit the nail on the head. We have a progressive disease that is unpredictable and I dislike the idea of waiting until the condition worsens to take medication to slow the progression. Living with side effects may be the price we have to pay to live longer just as is the exercise which is not always easy when you don’t feel well. I…[Read more]

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    Darcy replied to the topic When should you start antifibrotics? in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 month, 2 weeks ago

    Thanks Christine. It’s nice to know there are people who tolerate the meds and know how manage side effects.

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    Darcy replied to the topic When should you start antifibrotics? in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 month, 2 weeks ago

    Thanks Jeff. That is helpful information.

    Darcy

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    Darcy started the topic When should you start antifibrotics? in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 month, 2 weeks ago

    Hello,

    I actually was diagnosed six years ago but no one told me anything about IPF and I didn’t realize how serious it is or even really what it is. They did a CT scan two years in a row and said it was stable and mild so I thought it was something that would never effect me. Then last fall my mitral valve was severely prolapsed and I had open h…[Read more]

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    Darcy replied to the topic Telling your family in the forum Living with Pulmonary Fibrosis: 50+ 2 months, 1 week ago

    Hi Michael,

    I just saw my doctor today and was diagnosed with IPF. I had an inkling I had it because of an earlier CT scan that showed fibrotic changes although I had received no follow-up for that so today was the day I really knew. I don’t know what your situation is but my disease is still mild. I told my kids I was seeing the doctor today and…[Read more]

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    Darcy became a registered member 3 months, 2 weeks ago

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      Christie Patient replied 3 months, 2 weeks ago

      Welcome to the forum community Darcy, we’re glad you found us!

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