Pulmonary Fibrosis News Forums logo
  • Home
  • About Our Forums
  • Forums
  • Groups
  • Members
  • Activity
  • Search
  • What can we help you find today?

Darcy

Home Members Darcy
show less show more
Profile picture of Darcy

@darcy424

  • Activity
  • Profile
  • Friends 0
  • Groups 0
  • Forums
  • Articles
  • Personal
  • Mentions
  • Favorites
  • Friends
  • Groups
  • Profile picture of Darcy

    Darcy replied to the topic No symptoms in the forum Living with Pulmonary Fibrosis: 50+ 6 months, 2 weeks ago

    Hi Nina,

    This disease is hard to wrap your mind around when you are symptomatic. I was diagnosed in 2016 because I had cancer. Subsequent CT scans have shown still mild disease with no progression six 1/2 years later. Last fall it turned out I had a severely prolapsed mitral valve and had to have heart surgery. The only reason I tell you this is…[Read more]

  • Profile picture of Darcy

    Darcy started the topic Poor Air Quality and IPF in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 8 months, 1 week ago

    Hello,

    I live in an area that gets wild fires and often gets poor air quality because of it. What are the guidelines for IPF and poor air quality? At what point do I need to limit activities and take precautions and what are those precautions? My lungs currently are not too bad and I would like to keep them that way as long as possible.
    Darcy

  • Profile picture of Darcy

    Darcy replied to the topic Diagnosed with IPF – What can we expect? in the forum Join the Discussion: Welcome to all PF/IPF Patients 8 months, 1 week ago

    Hi Chati,

    I may not be the best person to answer this because I am still learning about IPF myself but, I believe the answer is that the course of the disease varies from person to person. Some people, like myself, live with mild disease for years while others progress more quickly. I was diagnosed six years ago and still maintain good lung…[Read more]

  • Profile picture of Darcy

    Darcy replied to the topic When should you start antifibrotics? in the forum Join the Discussion: Welcome to all PF/IPF Patients 9 months, 4 weeks ago

    Thanks for the advice Marianne. I think it is good advice to start the medicine soon even though I don’t have much in the way of symptoms yet. But I guess that is the point, right?

    Darcy

  • Profile picture of Darcy

    Darcy replied to the topic When should you start antifibrotics? in the forum Join the Discussion: Welcome to all PF/IPF Patients 10 months, 1 week ago

    Michael, you hit the nail on the head. We have a progressive disease that is unpredictable and I dislike the idea of waiting until the condition worsens to take medication to slow the progression. Living with side effects may be the price we have to pay to live longer just as is the exercise which is not always easy when you don’t feel well. I…[Read more]

  • Profile picture of Darcy

    Darcy replied to the topic When should you start antifibrotics? in the forum Join the Discussion: Welcome to all PF/IPF Patients 10 months, 1 week ago

    Thanks Christine. It’s nice to know there are people who tolerate the meds and know how manage side effects.

  • Profile picture of Darcy

    Darcy replied to the topic When should you start antifibrotics? in the forum Join the Discussion: Welcome to all PF/IPF Patients 10 months, 1 week ago

    Thanks Jeff. That is helpful information.

    Darcy

  • Profile picture of Darcy

    Darcy started the topic When should you start antifibrotics? in the forum Join the Discussion: Welcome to all PF/IPF Patients 10 months, 2 weeks ago

    Hello,

    I actually was diagnosed six years ago but no one told me anything about IPF and I didn’t realize how serious it is or even really what it is. They did a CT scan two years in a row and said it was stable and mild so I thought it was something that would never effect me. Then last fall my mitral valve was severely prolapsed and I had open h…[Read more]

  • Profile picture of Darcy

    Darcy replied to the topic Telling your family in the forum Living with Pulmonary Fibrosis: 50+ 11 months, 1 week ago

    Hi Michael,

    I just saw my doctor today and was diagnosed with IPF. I had an inkling I had it because of an earlier CT scan that showed fibrotic changes although I had received no follow-up for that so today was the day I really knew. I don’t know what your situation is but my disease is still mild. I told my kids I was seeing the doctor today and…[Read more]

  • Profile picture of Darcy

    Darcy became a registered member 1 year ago

    • Profile picture of Christie Patient
      Christie Patient replied 1 year ago

      Welcome to the forum community Darcy, we’re glad you found us!

Profile Photo Brendan

Login

Register

Search forums

Generic selectors
Exact matches only
Search in title
Search in content
Post Type Selectors
Search in posts
Search in pages

Who’s Online

There are no users currently online

Newest Topics

  • HLA Blood test — part of the lung transplant evaluation by Marisa Beard
  • New Drug by DJ
  • Travel Tips and Tricks by Gina Myhill-Jones
  • Comparing portable oxygen concentrators by Charlene Marshall
  • Hot Flashes by Daughter

Recent Replies

  • 5 Fears About Unemployment for Pulmonary Fibrosis Patients
  • How to Decide When to Stop Working with Pulmonary Fibrosis.
  • Comparing portable oxygen concentrators
  • OFEV and Surgery
  • How to Decide When to Stop Working with Pulmonary Fibrosis.

Members

Newest | Active | Popular
  • Profile picture of Terry Neu
    Terry Neu
    Active 31 minutes ago
  • Profile picture of Mindy
    Mindy
    Active 43 minutes ago
  • Profile picture of Michael Burd
    Michael Burd
    Active 2 hours, 22 minutes ago
  • Profile picture of Maureen Charles
    Maureen Charles
    Active 2 hours, 27 minutes ago
  • Profile picture of Pam Maguire
    Pam Maguire
    Active 2 hours, 54 minutes ago

Forums

  • Coronavirus (COVID-19) and Pulmonary Fibrosis
  • Healthy Recipe Sharing
  • Hobbies & Projects
  • Polls & Quizzes
  • Using Our Forums
  • Flash Briefings & Podcasts
  • Join the Discussion: Welcome to all PF/IPF Patients
  • 30 Days of PF
  • In Loving Memory
  • Wednesday Wins
  • Diagnosis​ ​Information​ ​and​ ​General​ ​Questions
  • Caregivers and Spouses
  • Employment & Pulmonary Fibrosis
  • Clinical Trials
  • Research and Development
  • Esbriet (Pirfenidone)
  • Ofev (Nintedanib)
  • Canadians Living with Pulmonary Fibrosis
  • Pulmonary Fibrosis Awareness & Advocacy
  • PF Caregivers, Family Members & Spouses
  • Living with Pulmonary Fibrosis: 50+
  • Pre/Post Lung Transplant
  • Young Adults Living with Pulmonary Fibrosis (40 & Under)
  • Upcoming Medical Appointments: Q&As
  • Most popular topics
  • Topics with no replies

Pulmonary Fibrosis News Today

BioNews Services, LLC
3 W Garden St
Suite 700
Pensacola, FL 32502
Email: [email protected]
Phone: +1-800-936-1363
  • Email Forum Support
  • Publishing Team
  • Leadership
  • Our Culture
  • Corrections Policy
  • Careers
  • Contact Us
  • Terms of Service
  • Privacy Policy
  • Disable Notifications
  • Advertising Policy

Disclaimer

Pulmonary Fibrosis News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

BioNews, Inc.

3 W Garden St
Suite 700
Pensacola, FL 32502
Website: bionews.com
Email: [email protected]
Phone: 1-800-936-1363

  • Email Forum Support
  • Publishing Team
  • Leadership
  • Our Culture
  • Corrections Policy
  • Careers
  • Contact Us
  • Terms of Service
  • Privacy Policy
  • Disable Notifications
  • Advertising Policy
Disclaimer

This site is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

Copyright © 2017-2023 All rights reserved.

©[current-year] KLEO Template a premium and multipurpose theme from Seventh Queen