Hello Pamela.

I just saw your posting, and I would have responded earlier, but I’m still rceovering from my own transplant. (5 weeks ago)

 

I as in EXACTLY the same situation as you: 72 years old and turned down by both MGH and Brigham and Womens’.  Without going into too much detail, there was a gastric concern that both hospitals did… Read more

Greetings folks,

I share the problem that many of us seem to have:  oxygen drops precipitously when standing after sleeping, sitting, or driving.  I don’t seem aware of it until it drops into the 70s.  Out of concern for organ function and safety, especially driving, I check O2 frequently, and Oximeters have become an obsession for me.  I was… Read more

Hello Wendy, et al,

My diagnosis is hypersensitivity pneumonitis, which might be different from yours.  However, I initially experienced the same sort of violent debilitating coughing which left me exhausted with aching abdominal muscles.  This could be induced by cold air, hot air, humid air (pretty much any air), talking, and, as you say,… Read more

Greetings @falguni9003,

The Inogen One G3 and an identical OxyGo G3 support 5L pulsed.  These are portables, suitable for airline use.  I would note that at the 5L setting, the device consumes substantially more power.  I think I get an hour off the single battery at the 5L setting.   There are numerous others, some with up to 6L, and some… Read more

Hello Steve ( @steve-dragoo )

I tried to reply via email earlier, but it was rejected by the server.  Now I know better.
I have hypersensitivity pneaumonitus (can’t get air in) not IPF, so the details of my experience may not apply. Also, I tend to be more “liberal” in my approach to acquiring PoCs.  I have a tech background, and my… Read more

Greetings all,

I’ve recently grown from being in denial of my condition to embracing how oxygen can improve my life.  A trip to the hospital for pneumonia served as an additional incentive.  My doctors gave me a prescription for 2L/4L (rest/exertion).  The oxygen company supplied a 50 pound soviet-styled 5Lpm stationary concentrator which… Read more

Hello Charlene, et al,

Once I left the “Denial” stage,  and I realized that I’d be using oxygen a LOT if I wanted to enjoy life or just get things done, I quickly noticed that there were issues to solve and I’d have to “Turn Pro” to improve things. I first noticed the cannula problem when I saw what I feared calluses developing in my… Read more

Greetings All,

I’m new to the forum, and just starting to scroll through the topics.

For the first year, I was in denial over needing oxygen, and was uncomfortable being seen using my portable.  I  didn’t want to admit to my limitations.  Consequently, my activity was very restricted, and I ignored opportunities for perks.  (I call this my… Read more