I think the largest and fasted changed that occurred was golfing,  a social outing that I now realize I took for granted. Thinking it would be a hobby I would do in retirement and into my 90’s,  being part of a league with 100 other guys for years…. Sunday morning with a few close friends, fun tournaments and annual trip to Florida during the… Read more

Charlene

Thats very interesting with your journey to diagnosis experience, it really makes we wonder how many people on on a similar path.

Thanks again, here is an update on the last 5 days or so on the 50mg of prednisone after the “treatment”

Might have pushed it too hard cutting the grass,  on the weekend, paid for it with some extra… Read more

Cant seem to configure and insert the photo….is there a guide for this?

thanks dave

Sorry for taking so long on the CT Scan Disk information

We were (are able) to request copies of all our procedures,  it takes a couple of days and they just load it onto a CD for pick up at imaging.

It seems the disk has a working 3d Imaging application with all the sides organized into a few folders.

One folder in particular has over… Read more

The overall symptoms came gradual,  and I was being treated for asthma first with the Blue puffer for a few years, increasing assuage until moved to the red symbacourt,   more and more with increasing breathing difficulties, after the the 4th breathing test after about 3.5 years it was seen as something different, and we started the process of… Read more

I will answer as best I can,  these post have been very helpful from everyone,  it was the education we were looking for. Thanks you for all your efforts.

I could not reasonably say either a virus or a flare up,  and i think the specialist was puzzled as well.

Part 1) The discussion was 250-1000mg of solumedrol  for 3 days administered… Read more

thanks for all the posts,  I just went through a treatment that was interesting to say the least.

After a 2nd lung CT scan after 5 months from diagnosis,  the doctor was shocked at the rate of progression

Background: Not 100% sure yet between Stage 4 Sarcoidosis to Chronic Hypersensitive Pnemanites.  All under Pulmonary Fibrosis,  but seems… Read more