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Things to Regularly Re-Evaluate as a Patient with Pulmonary Fibrosis.
Living with a chronic lung disease, such as pulmonary fibrosis (PF) is tough and can be physically, mentally and emotionally exhausting. Adjusting to changes and constantly re-evaluating our abilities is an ongoing learning for those of us living with PF. At least, this has been an ongoing task for me as it certainly is not something that I have mastered yet, despite living with this disease for 2+ years now.
Some of the things I used to do before my diagnosis of IPF are no longer possible for me, plain and simple. There are other things that I can do occasionally, and depending on how I am feeling (ie. whether I’m fatigued, struggling with a cold or what the weather is like) and even more things that I can still do the majority of the time but not always. It is the latter two tasks that leave me continually re-evaluating what I still can do with IPF and what I cannot.
Specific tasks aside, there are many life-type responsibilities that I am constantly re-evaluating and trying to focus on whether I can do them or not, how often and what might the risk me to my health and happiness. Here are some of those “bigger picture” type things:
- Physical versus mental and emotional energy expenditure: “Pick your battles.” Sometimes I am frustrated with processes at work, and other times with what people say, do or how they behave. I often have to take the time to re-evaluate the physical energy that I expend in resolving my concerns, plus the emotional and mental energy. Sometimes it is easier just to let things go.
- What brings you happiness versus what doesn’t: I have to admit that I’ve never been good at putting myself first, however, in the last few months I’ve been committed to doing this. If I don’t want to do something, or if it is something that won’t bring me happiness, I choose not to do it. As all with IPF know, life is too short to be doing things that make you miserable. I wish I didn’t have to be diagnosed with IPF to learn this lesson.
- What you’re willing to compromise: I am no longer willing to compromise my physical health and forego rest or personal time for the sake of someone else. I need the time to rest and recuperate, and I enjoy my quiet time to work on my tasks and projects. I often have to re-evaluate how much I am compromising for the sake of others and make changes when there is an imbalance.
Are there specific tasks (ie. sports or hobbies) that you re-evaluate your ability to complete since your diagnosis of IPF/PF?
What about the broader-picture things, similar to things I’ve listed above: are you constantly re-evaluating those as you learn to live with a chronic lung disease?
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