I was exposed to Agent Orange but the VA denied my claim. The explanation they gave me was that it is possible that Agent Orange caused my IPF and that it is also possible something else did. Since then, the Courts have in at least two cases ruled in favor of the veteran, when I return home I will posts links. I have a good c…[Read more]
Mindfulness is a tool/way of life that has helped me deal with IPF and other unwanted feelings/sensations etc but most of all it has helped me become less judgemental and to stay in the here and now. I would say the practice has helped me with the Racing Mind syndrome that seems to affect many of us. I initially didn’t want to do…[Read more]
Good topic snd posts too. Today, I feel lung transplants are not always the best option , at least for me. Similar to Bob, above, I am too old and i dont believe in aggressive therapy for us old folks. I do believe in transplants and other forms of aggressive treatment edpecially if one is young. I wish you the best and i have faith a…[Read more]
I am at a point in life where I simply ignore such comments, people may mean well or they may be mean, regardless I take such comments as stemming from ignorance and I don’t feel I have to educate them.
“What brings you happiness versus what doesn’t: I have to admit that I’ve never been good at putting myself first, however, in the last few months I’ve been committed to doing this. If I don’t want to do something, or if it is something that won’t bring me happiness, I choose not to do it. As all with IPF know, life is too short to…[Read more]
“We feel stigmatized I guess and it is totally wrong to feel that way. We have lived a good life, done many things for other folks, helped out those who needed it to move easier…Why not use the assists that are available for us now? Let’s just stuff our pride and our feelings of inadequacy in our pockets and accept the help we are able…[Read more]
While not as much as before IPF, I am still doing volunteer work and it helps me from slipping into a depressed state mind which is easy to do you if I focus on limitations this illness brings. As long as I can help others I know I am still able to make choices … The biggest threat ipf gives me is becoming so helpless that I can’t…[Read more]
Interesting article and subject, Telomere lengthening. Last week, I saw my primary IPF doctor and he mentioned the telomere and IPF research others are doing as well as his team’s research. I should have paid more attention and I will ask him for more details but he is basically looking at the problem as a cell division/repair…[Read more]
Depending on person asking, I usually explain it in one of two ways:
1. It means my lungs are damaged and the illness will get worse until my lungs won’t work at all. Doctors don’t know what cause it nor how to cure it; yet. Doctors said I had about three good years (meaning very little change) and two years of rapid decline. That was seven ye…[Read more]
Thank you for your posting. I have a better understanding of the struggles caretaker experience and this will help me over the long run. One lesson for me is I will have to be patient with my caretaker and others who assist me. Currently, I don’t have a caretaker but I do have a couple of people helping me as needed.
I have a few more months before my lease is up but I am already searching. Last year I went to Oregon and Northern California, I fell in love with this small town called Crescent City, near the beach and near the forests, in the winter there is quite a bit of rain so I will likely move to the Santa Maria – Santa Barbara area.
This is another reason I ought to move somewhere along the Pacific Coast……
Form Aishia’s link:
<h3>What is Salt Therapy?</h3> Humans have been using salt for therapeutic uses for thousands of years. Anyone who has spent a day at the ocean knows that salt-filled air has something special about it. Hippocrates, the father of modern medicine,…[Read more]
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