Pulmonary Fibrosis News Forums logo
  • Home
  • About Our Forums
  • Forums
  • Groups
  • Members
  • Activity
  • Search
  • What can we help you find today?

Susan Howitt

Home Members Susan Howitt
show less show more
Profile picture of Susan Howitt

@reglois

  • Activity
  • Profile
  • Friends 2
  • Groups 1
  • Forums
  • Articles
  • Personal
  • Mentions
  • Favorites
  • Friends
  • Groups
  • Profile picture of Susan Howitt

    Susan Howitt replied to the topic Coughing aftr meals in the forum Living with Pulmonary Fibrosis: 50+ 1 year, 7 months ago

    For coughing at any time can e severe but at least it brings up the plegm, I take tiny sips of a good strong quality orange juice with pulp and keep an eye on myO2 levels which drop dramatically when I eat

     

    regards Sue

  • Profile picture of Susan Howitt

    Susan Howitt replied to the topic The IPF Patient's Experience with Prednisone in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 1 year, 7 months ago

    Morning

     

    I actually would not be without Predisolone.  Started off at a 60 mg dose like you but for 2 weeks only, sleep was a problem on a high dose, then weaned down to my maintenance dose of 10 mgs, been on that for three years with absolutely no problems.  At first I could eat a scabby dog but now al OK, I am allowed by my doctor to go up i…[Read more]

  • Profile picture of Susan Howitt

    Susan Howitt replied to the topic Supplemental Oxygen Questions in the forum Living with Pulmonary Fibrosis: 50+ 1 year, 8 months ago

    Happy to have made you smile, please do phone back now that you are not in such shock at their original answer.

  • Profile picture of Susan Howitt

    Susan Howitt replied to the topic Supplemental Oxygen Questions in the forum Living with Pulmonary Fibrosis: 50+ 1 year, 8 months ago

    Oh Karen

    I cannot believe you got that sort of answer, hope you said something along the lines of, put a pillow tightly over your face and see how long you consider lack of O2 not a priority !!!!   grrrrrrr

     

     

  • Profile picture of Susan Howitt

    Susan Howitt replied to the topic Supplemental Oxygen Questions in the forum Living with Pulmonary Fibrosis: 50+ 1 year, 8 months ago

    Hi Jill

     

    No insurance increase on either my car or house (same insurance company) BUT I live in France and way out in the sticks so things might be a little more relaxed here   The sign on the door is NOT a requirement, just a polite warning in case of fire.

     

    Hope you can get things sorted without insurance hikes.  I just had the feeling th…[Read more]

  • Profile picture of Susan Howitt

    Susan Howitt replied to the topic Supplemental Oxygen Questions in the forum Living with Pulmonary Fibrosis: 50+ 1 year, 8 months ago

    Hi

    I have only had to inform my insurance company, house & car, that I have large O2 tanks in the house+ 2 smaller ones and one small one permanently in the car. I do have a sign on the front door that Ii have O2 inside

    Take care one and all

     

    Sue

  • Profile picture of Susan Howitt

    Susan Howitt replied to the topic Supplemental Oxygen Questions in the forum Living with Pulmonary Fibrosis: 50+ 1 year, 8 months ago

    Hi Jill

    I have ,  a Caire Hi-flow liquid content which go up to 15 ltrs , the other is a companion T P/N 775499-B, also up to 15 lts.

    At first the filling up is a bit of a chore, you have to really press down on the filler end and keep up the pressure whilst filling, I count to 20, release lever listen until the gurgling (filling, quick 10…[Read more]

  • Profile picture of Susan Howitt

    Susan Howitt replied to the topic Supplemental Oxygen Questions in the forum Living with Pulmonary Fibrosis: 50+ 1 year, 8 months ago

    Hi Elizabeth

    I am in France so my supplies are vastly different to the USA as well.  I get what I want and what I need no problems, just have to ask.

    To my mind the bigger the portable concentrator the better as you can usually get further, bearing in mind that to my knowledge no concentrator seems to supply more than 3 ltrs no matter what…[Read more]

  • Profile picture of Susan Howitt

    Susan Howitt replied to the topic Supplemental Oxygen Questions in the forum Living with Pulmonary Fibrosis: 50+ 1 year, 8 months ago

    Hi Marianne

     

    I think that is awful that the O2 suppliers can decide if you do or don’t qualify even after a doctors note.  I had a POC long before I was on 24h O2, I now have 2 Pocs as my O2 needs are high and each POC goes up to 17 ltspm, the O2 company suggested I had 2 !!! so as not to be caught out by any longer than 2 hour visits.  I s…[Read more]

  • Profile picture of Susan Howitt

    Susan Howitt replied to the topic Acute Exacerbation and Cyclophosphamide in the forum Living with Pulmonary Fibrosis: 50+ 1 year, 9 months ago

    Hi Wendy

    Sorry to hear you have had a seeming exacerbation, quite scary aren’t they.  I am absolutely dreading the pine pollen season as I am allergic and live surrounded by forest of which quite a goodly proportion are pine trees as this is the biggest area for Christmas tree and timber production !!!

    I can sit quite comfortably and maintain…[Read more]

  • Profile picture of Susan Howitt

    Susan Howitt replied to the topic Supplemental Oxygen Questions in the forum Living with Pulmonary Fibrosis: 50+ 1 year, 9 months ago

    Hi Sam

    I am in the same position as you, at rest I am up to 92 but the minute I move I drop to 75/69 at my lowest, I up my O2 intake sometimes up to 13 to be able to shower, sadly only twice a week as it takes so much out of me, I have stools scattered around the house (live on my own but my daughter comes in twice a day)  to be able to rest on…[Read more]

  • Profile picture of Susan Howitt

    Susan Howitt replied to the topic Supplemental Oxygen Questions in the forum Living with Pulmonary Fibrosis: 50+ 1 year, 10 months ago

    I get nose bleeds all the time, not gushers but nose bleeds each time I blow my nose.  I am on asprin protect agains blood clots so also get random unexplained bruises, predisolone causes these too.

  • Profile picture of Susan Howitt

    Susan Howitt replied to the topic Fluctuating Body Temperatures – Cold & Hot in the forum Using Our Forums 1 year, 10 months ago

    I have exactly the opposite problem, can’t stay warm, even with these last few days being very warm, 24° I am here in thick jumper and fluffy blanket with hot water bottle !!!  Not on any anti-fibrotic

     

     

  • Profile picture of Susan Howitt

    Susan Howitt replied to the topic Extreme Fatigue in the forum Living with Pulmonary Fibrosis: 50+ 1 year, 10 months ago

    Sorry Wendy, I just sleep through them too. I have found that if I eat something, usually a half cup of a substantial soup, I sleep deeper and better and seem to get through the episode faster.  Sorry can’t be of more help

     

    stay safe   Sue

  • Profile picture of Susan Howitt

    Susan Howitt replied to the topic Supplemental Oxygen Questions in the forum Living with Pulmonary Fibrosis: 50+ 1 year, 10 months ago

    On oxygen I have a bubbler so until I went on really high out put  never had a problem.  Much to every ones horror I use a moisteriser (consisting of glycerine, parrafin and vaseline, prescribed by my doctor for my very dry skin caused by the scleroderma) up my nose now, silky smooth and works wonders for me, in the very tiniest of quantities. I k…[Read more]

  • Profile picture of Susan Howitt

    Susan Howitt replied to the topic Supplemental Oxygen Questions in the forum Living with Pulmonary Fibrosis: 50+ 1 year, 10 months ago

    Hi Marianne

     

    My oximeter was checked by the hospital during a recent stay and it was spot on this their electronic one, I do know that my other meter is a few ° out so rely on my AVAX one, my readings are all over the place depending what I am doing or have done, takes a minute or two for my levels to go done and about 5 to 10 minutes to get…[Read more]

  • Profile picture of Susan Howitt

    Susan Howitt replied to the topic Covid vaccine in the forum Coronavirus (COVID-19) and Pulmonary Fibrosis 1 year, 10 months ago

    Hi Bill

     

    Yes I am trying to get the Moderna vaccine, seems to be the safest one for me.  Can’t even get a Pfizer jab here even if I wanted it !!!  Live out in the sticks and in my county there were only 800 jabs (Pfizer available) and all went to Drs and frontline workers.  Being in the sticks I am safer, I hope, than most people.

  • Profile picture of Susan Howitt

    Susan Howitt replied to the topic Supplemental Oxygen Questions in the forum Living with Pulmonary Fibrosis: 50+ 1 year, 10 months ago

    Hi Bob

     

    Dear Bob

    I had 2 Inogen  concentrators one for the home and one back pack and was very very pleased with it but they only go up to a maximum of 3 litres a minute, as you say can be plugged in anywhere but please be aware that it has no filters re viruses etc so you breathe in anything that is in the air around you, scary in these…[Read more]

  • Profile picture of Susan Howitt

    Susan Howitt replied to the topic Covid vaccine in the forum Coronavirus (COVID-19) and Pulmonary Fibrosis 1 year, 10 months ago

    Hi Marianne

    Glad you got your Covid vaccine, even though I am classed a critically vulnerable I haven’t yet been able to get an appointment for the vaccine, I am too scared to take the Pfizer vaccine, my friends husband had the reaction I dread the most, he was unable to breathe easily for about 1/4 of an hour during the night following his…[Read more]

  • Profile picture of Susan Howitt

    Susan Howitt replied to the topic Supplemental Oxygen Questions in the forum Living with Pulmonary Fibrosis: 50+ 1 year, 11 months ago

    Hi Marianne

    I am English but live permanently in Burgundy France.   I am unfortunately I am at stage 4 following the latest exacerbation, and 27/7 O2, don’t need much when sitting or sleeping, 4lts, but if I move even on max which at the moment is 6,  I drop to 55 blood oxy, NOT good so have to have extra bottle that I can wheel around as a ba…[Read more]

  • Load More
Profile Photo Judy Reid Profile Photo Lyn Ryan

Login

Register

Search forums

Generic selectors
Exact matches only
Search in title
Search in content
Post Type Selectors
Search in posts
Search in pages

Who’s Online

There are no users currently online

Newest Topics

  • Any Poetry Lovers Out There? by Christie Patient
  • Who Has Inspired You? by Charlene Marshall
  • Has anyone seen the film “More Than Ever” about an IPF patient? by Frank Bigley
  • Love Letters by Christie Patient
  • Larry Runyon by Samuel Kirton

Recent Replies

  • Everyday Challenges of Living with Pulmonary Fibrosis
  • Larry Runyon
  • Painful hand and leg cramps
  • Deep Tissue (or red light) Laser Therapy
  • Deep Tissue (or red light) Laser Therapy

Members

Newest | Active | Popular
  • Profile picture of Daniel Bell
    Daniel Bell
    Active 40 minutes ago
  • Profile picture of José
    José
    Active 1 hour, 5 minutes ago
  • Profile picture of Mindy
    Mindy
    Active 1 hour, 25 minutes ago
  • Profile picture of Michele Andrade
    Michele Andrade
    Active 1 hour, 27 minutes ago
  • Profile picture of Marc Tebben
    Marc Tebben
    Active 1 hour, 48 minutes ago

Forums

  • Coronavirus (COVID-19) and Pulmonary Fibrosis
  • Healthy Recipe Sharing
  • Hobbies & Projects
  • Polls & Quizzes
  • Using Our Forums
  • Flash Briefings & Podcasts
  • Join the Discussion: Welcome to all PF/IPF Patients
  • 30 Days of PF
  • In Loving Memory
  • Wednesday Wins
  • Diagnosis​ ​Information​ ​and​ ​General​ ​Questions
  • Caregivers and Spouses
  • Employment & Pulmonary Fibrosis
  • Clinical Trials
  • Research and Development
  • Esbriet (Pirfenidone)
  • Ofev (Nintedanib)
  • Canadians Living with Pulmonary Fibrosis
  • Pulmonary Fibrosis Awareness & Advocacy
  • PF Caregivers, Family Members & Spouses
  • Living with Pulmonary Fibrosis: 50+
  • Pre/Post Lung Transplant
  • Young Adults Living with Pulmonary Fibrosis (40 & Under)
  • Upcoming Medical Appointments: Q&As
  • Most popular topics
  • Topics with no replies


Pulmonary Fibrosis News Today

BioNews Services, LLC
3 W Garden St
Suite 700
Pensacola, FL 32502
Email: [email protected]
Phone: +1-800-936-1363
  • Email Forum Support
  • Publishing Team
  • Leadership
  • Our Culture
  • Corrections Policy
  • Careers
  • Contact Us
  • Terms of Service
  • Privacy Policy
  • Disable Notifications
  • Advertising Policy

Disclaimer

Pulmonary Fibrosis News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

BioNews, Inc.

3 W Garden St
Suite 700
Pensacola, FL 32502
Website: bionews.com
Email: [email protected]
Phone: 1-800-936-1363

  • Email Forum Support
  • Publishing Team
  • Leadership
  • Our Culture
  • Corrections Policy
  • Careers
  • Contact Us
  • Terms of Service
  • Privacy Policy
  • Disable Notifications
  • Advertising Policy
Disclaimer

This site is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

Copyright © 2017-2023 All rights reserved.

©[current-year] KLEO Template a premium and multipurpose theme from Seventh Queen