Pulmonary Fibrosis News Forums | Diggerdon | Activity https://pulmonaryfibrosisnews.com/forums/members/diggerdon/activity/ Activity feed for Diggerdon. Sat, 04 Apr 2026 05:48:03 -0500 https://buddypress.org/?v=2.20.0 en-US 30 hourly 2 4f7db5763a17ea098ced94d96596714d Diggerdon replied to the discussion On Ofev for nine months and had no stomach issues. Now having diarrhea constant in the forum Treatments and Science https://pulmonaryfibrosisnews.com/forums/forums/topic/on-ofev-for-nine-months-and-had-no-stomach-issues-now-having-diarrhea-constant/#post-37230 Fri, 28 Jun 2024 04:18:23 -0500 Reply to On Ofev for nine months and had no stomach issues. Now having diarrhea constant

I need to check out the Raisin Bran cereal which I really like. I’d rather have a non-drug solution to managing GI issues than taking another drug to manage side effects. If Raisin Bran doesn’t work, I’ll be content to continue with the Creon treatment….

Don D

]]> 6a0acdf64dff28786661c128f7b653b0 Diggerdon replied to the discussion On Ofev for nine months and had no stomach issues. Now having diarrhea constant in the forum Treatments and Science https://pulmonaryfibrosisnews.com/forums/forums/topic/on-ofev-for-nine-months-and-had-no-stomach-issues-now-having-diarrhea-constant/#post-37229 Fri, 28 Jun 2024 04:12:10 -0500 Reply to On Ofev for nine months and had no stomach issues. Now having diarrhea constant

Similar to my experience. I started at 150 mg Ofev twice daily. Doctor eventually reduced dosage to 100 mg twice daily which helped but not totally, Another doctor had noted I had little pancreatic enzymes on annual blood test. After better part of the year investigating, I found that Ofev induce pancreatitis. Stomach pains, bloating,…

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]]> 15b9cb1682d71c1d6b3f525b497c4308 Diggerdon replied to the discussion Ofev issues in the forum Ofev (Nintedanib) https://pulmonaryfibrosisnews.com/forums/forums/topic/ofev-issues/#post-36714 Sat, 02 Mar 2024 01:25:19 -0600 Reply to Ofev issues

I am 75 and have on Ofev since 2017. Within 6 weeks or so of beginning Ofev full strength (150 mg 2X) I began having excessive GI problems. An annual blood test showed I had low pancreatic enzymes caused by pancreatitis. I had a CT, endoscopy and dietary changes with no results. After much online & phone research, I finally found a single…

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]]> 042d48144bc2a3b4a96810a34a5dc0a6 Diggerdon replied to the discussion abdominal cramps with Ofev in the forum Ofev (Nintedanib) https://pulmonaryfibrosisnews.com/forums/forums/topic/abdominal-cramps-with-ofev/#post-36533 Sun, 28 Jan 2024 01:19:32 -0600 Reply to abdominal cramps with Ofev

I too had severe abdominal and gastrointestinal problems that started about a 4-6 weeks after I began Ofev 300 mg twice a day. Later on my annual wellness blood test showed I had a misfunctional pancreas that was underproducing enzymes so that my digestion was severely impacted; I was losing 1.5-2 lbs/week from malnutrition. I had…

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]]> 4e6818e7781e9fa2917f8d4f8e1979ad Diggerdon replied to the discussion NEW Covid vaccines in the forum PF Communities https://pulmonaryfibrosisnews.com/forums/forums/topic/new-covid-vaccines/#post-36532 Sun, 28 Jan 2024 00:33:45 -0600 Reply to NEW Covid vaccines

Carolyn- I am 75 and have been on Ofev since 2016. I have had all Pneumonia, Flu, RSV, and Covid shots through last Sept. with no unusual side effects. However, while my pulmonologist encourages such inoculations, both my GP and cardiologist recommend I hold off on the current Covid booster due to cardiac and other risks. So far I have had…

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]]> 36379afcfc40c1204f0664a9bd35a3d6 Diggerdon became a registered member https://pulmonaryfibrosisnews.com/forums/activity/p/41051/ Wed, 13 Dec 2023 15:15:37 -0600 0