I was diagnosed in the Summer of 2020 with interstitial lung disease (ILD) after 9 months of a dry cough. As my breathing worsened, my pulmonologist started me on OFEV in Aug of 2021. Being able to manage the side effects, my condition was fairly stable thru 2022 and I could function without oxygen (except during sleep) and able to “catch up”… Read more

Thanks Kim for this most encouraging info. Just so happens I self referred to them this past Monday and I received a call from Dr. Baz, one of their transplant surgeons, I think. He needed films/scans of the heart cath I had at Vanderbilt. He seemed genuinely concerned about me and my case. He said “I didn’t want your referral to fall thru the… Read more

Thanks Kim, sounds like your husband’s situation was the same as mine now. The only difference is my age, 74. I will definitely check them out. I live in North Alabama and certainly could easily relocate.

Thanks John…

Alan, good luck on your evaluation at UPMC. I think I’ll try and get referred there as well.

Thanks everyone for all the information. Since I originally posted Cleveland Clinic notified me that the risk for my transplant at my age was too high for them to take. I was referred to Duke but haven’t heard from them yet.

I was recently declined acceptance for lung transplant at Vanderbilt University due to artery blockages. I was told CC does more high risk transplants so I asked Vanderbilt to refer me to them and they said they would. Does anyone have experience with Cleveland that could share their experience. Also, I have concern that I live over 600 miles… Read more