Pulmonary Fibrosis News Forums | Edward Grant | Activity https://pulmonaryfibrosisnews.com/forums/members/edot/activity/ Activity feed for Edward Grant. Sat, 11 Apr 2026 16:44:59 -0500 https://buddypress.org/?v=2.20.0 en-US 30 hourly 2 eca81bf5dc4baa64459e42300c7a8822 Edward Grant replied to the discussion Life span in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/life-span/#post-27928 Wed, 31 Mar 2021 11:46:04 -0500 Reply to Life span

I lost my husband, my soulmate last week to a combination of heart failure and PF. I am posting to actually let those with this horrible disease know that the lifespan is variable and not written in stone. My husband was diagnosed over 20 years ago when a heart attack revealed the crackling in his lungs.  We had an amazing life and shared… Read more

]]> fdd368ed1be4bf23afac6884e36324c3 Edward Grant replied to the discussion Dizziness and IPF in the forum PF Life: 50+ https://pulmonaryfibrosisnews.com/forums/forums/topic/dizziness-and-ipf/#post-26762 Tue, 05 Jan 2021 21:49:05 -0600 Reply to Dizziness and IPF

I have experienced dizziness in the morning but thought it was from getting up too fast (well not too fast lol)! I use a nebulizer usually twice a day and find it helps get the mucus up. However the medicine makes me extremely shaky in not only my hands but my stomach also.  My nebulizer and oxygen attaches to a Volara machine by hillrom… Read more

]]> 4707e761b440dd463c93d4ab52da8dde Edward Grant replied to the discussion DEALING WITH OFEV side effects in the forum PF Life: 50+ https://pulmonaryfibrosisnews.com/forums/forums/topic/dealing-with-ofev-side-effects/#post-25856 Mon, 19 Oct 2020 23:24:21 -0500 Reply to DEALING WITH OFEV side effects

Thank you for your input. We appreciate the help.  Ed’s pulmonologist just put him on the 100mg instead of the 150mg. His main issue from the OFEV is the stomach pain.  He is on 2ml oxygen, takes pentoprazole for GERD and 5mg prednisone.  We have also found that taking small bites when eating ,careful swallowing, and no talking helps a little… Read more

]]> b28444470ab7d8155355ac9115993b27 Edward Grant replied to the discussion DEALING WITH OFEV side effects in the forum PF Life: 50+ https://pulmonaryfibrosisnews.com/forums/forums/topic/dealing-with-ofev-side-effects/#post-25844 Sun, 18 Oct 2020 16:27:53 -0500 Reply to DEALING WITH OFEV side effects

My husband just switched from Esbriet to OFEV.  He had the stomach pain with the Esbriet and now experiencing it with OFEV.   Rachel mentioned something about taking the Bio-K + probiotic.  Right now Ed is taking another nondairy probiotic drink. Our questions are how much should he take, should he take it everyday and should he take it with… Read more

]]> 4bd14463528aee1f8a4cfa0519fb8eff Edward Grant posted a new activity comment https://pulmonaryfibrosisnews.com/forums/activity/p/18342/#acomment-18385 Sat, 29 Feb 2020 17:22:51 -0600 Hi! I have been following the PF news for awhile but just registered. I not only find the site informative but it makes me feel not alone in my struggles with PF. I am retired military and a Vietnam Vet. I was in Vietnam when Agent Orange was sprayed. I have been on Esbriet for about 5 months but because of stomach issues I have stayed on… Read more

In reply to - Edward Grant became a registered member ]]> 058be45fde77c29e59c61a1e63a50d58 Edward Grant became a registered member https://pulmonaryfibrosisnews.com/forums/activity/p/18342/ Thu, 27 Feb 2020 18:06:05 -0600 2