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  • I lost my husband, my soulmate last week to a combination of heart failure and PF. I am posting to actually let those with this horrible disease know that the lifespan is variable and not written in stone. My husband was diagnosed over 20 years ago when a heart attack revealed the crackling in his lungs.  We had an amazing life and shared many…[Read more]

  • I have experienced dizziness in the morning but thought it was from getting up too fast (well not too fast lol)! I use a nebulizer usually twice a day and find it helps get the mucus up. However the medicine makes me extremely shaky in not only my hands but my stomach also.  My nebulizer and oxygen attaches to a Volara machine by hillrom which…[Read more]

  • Thank you for your input. We appreciate the help.  Ed’s pulmonologist just put him on the 100mg instead of the 150mg. His main issue from the OFEV is the stomach pain.  He is on 2ml oxygen, takes pentoprazole for GERD and 5mg prednisone.  We have also found that taking small bites when eating ,careful swallowing, and no talking helps a little with…[Read more]

  • My husband just switched from Esbriet to OFEV.  He had the stomach pain with the Esbriet and now experiencing it with OFEV.   Rachel mentioned something about taking the Bio-K + probiotic.  Right now Ed is taking another nondairy probiotic drink. Our questions are how much should he take, should he take it everyday and should he take it with th…[Read more]

  • Edward Grant posted a new activity comment 1 year, 1 month ago

    Hi! I have been following the PF news for awhile but just registered. I not only find the site informative but it makes me feel not alone in my struggles with PF. I am retired military and a Vietnam Vet. I was in Vietnam when Agent Orange was sprayed. I have been on Esbriet for about 5 months but because of stomach issues I have stayed on 2…[Read more]

  • Edward Grant became a registered member 1 year, 1 month ago

    • Hello Edward, thank you for joining your pulmonary fibrosis forum. Welcome!

    • Hi! I have been following the PF news for awhile but just registered. I not only find the site informative but it makes me feel not alone in my struggles with PF. I am retired military and a Vietnam Vet. I was in Vietnam when Agent Orange was sprayed. I have been on Esbriet for about 5 months but because of stomach issues I have stayed on 2…[Read more]

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