Hi all.  I am 85 years old and I’m in the final stages of this disease, and have been on oxygen 24/7 for over 3 years.  My needs have increased as it progresses.  I currently use 15l just to walk, and have 2 concentrators hooked in tandem to supply what I need in the home.

My pulmonologist has set my goal to try to stay above 89%, and I can do… Read more

I’ve been on it for 5 months now, and am lucky that i do not suffer any side effects.  My first pulmonologist really knew nothing about IPF, and simply would not put me on anything but some inhalers, which did no good.  By the time i got to a pulmonologist who specializes in IPF, I am on 10l flow on oxygen to walk, and use oxygen 24/7.  The… Read more

Hi Charlene. I use both symbiocort and ventolin inhalers twice a day, and have used them for almost a year and half. I forgot to use then one evening, and really had trouble catching my breath, even though I was on 8l oxygen flow, so they make a difference for me.
Last week I went through a 2 hour series of testing, including a nebulizer,… Read more

I am an 83 year old man that was diagnoised with IPF about 2 years ago. I just completed my seco jnd round of 24 therapy sessions,(twice a week).
I currently am on O2 24/7, and my walking need is 6 liters per minute.
The first day in therapy, at the end of my 6 minute walk with oxygen, my level dropped to 86. At the end of the sessions,… Read more

I simply cannot find anyone in the Lancaster, PA area that can or will do laser treatment. There are 2 Chiropractic practices that advertise having levrl IV lasers, but neither have responded to any inquiries I sent them. What would you suggest I to try to find someone to do the laser treatment?

Hi Barry.
I was diagnoised with IPF about 2 years ago. I have been on oxygen for over a year, and currently use a flow of 6l to walk.
Last August my wife and I flew from Lancaster PA to Colorado Springs to see our great grandkids. I made arrangments through my oxygen suplier for a concentrator in my motel room and oxygen bottles to use… Read more

I am not at the stage yet that I can avail my self of their services, but my wife has been very active in hospice and I won’t hesitate to use them.

Thanks again for sharing. I will keep in touch.

Floyd Montgomery

Hi Megan.

I am sorry about your dads death, but I wanted you to kmow how much it meams to me to read about his last 5 months.

I am an 83 year old man that was diagnoised with IPF about 15 months ago, and I am slowly but surely going down hill. Currently I am on 6l of oxygen to walk around and more if I do anything. I am discouraged about… Read more