Pulmonary Fibrosis News Forums | Maureen | Activity https://pulmonaryfibrosisnews.com/forums/members/gamo/activity/ Activity feed for Maureen. Tue, 21 Apr 2026 11:16:59 -0500 https://buddypress.org/?v=2.20.0 en-US 30 hourly 2 c43e2bde178d7c4eb849c9e4d5a8329f Maureen started the discussion Cardiopulmonary exercise (CPET) in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/cardiopulmonary-exercise-cpet/ Wed, 01 Dec 2021 10:24:05 -0600 Cardiopulmonary exercise (CPET)

My respiralogist just ordered this test to diagnose IPF plus a CT scan. Just wondering if others had this procedure to diagnose.
I’m from Canada – could this be a Canadian thing??

]]> c3298a13204f25b923e24c6bf61882fc Maureen started the discussion MRI to diagnose PF in the forum Using Our Forums https://pulmonaryfibrosisnews.com/forums/forums/topic/mri-to-diagnose-pf/ Thu, 11 Nov 2021 17:50:35 -0600 MRI to diagnose PF

Wondering if using an MRI test is being used to diagnose PF.  This would be a test I would pay for a diagnosis, instead of having to wait so long for another CT.

thanks for any feedback!

]]> b95615b6eb6c365ca5c9a3e6aea3d6ae Maureen replied to the discussion Do others with IPF cough for 20 minutes every morning? in the forum PF Life: 50+ https://pulmonaryfibrosisnews.com/forums/forums/topic/do-others-with-ipf-cough-for-20-minutes-every-morning/#post-30102 Thu, 30 Sep 2021 15:09:31 -0500 Reply to Do others with IPF cough for 20 minutes every morning?

Morning James
I have a Chinese acupuncturist who put me on cough medicine called Nin Jiom Pei Pa Koa. It works well for me cause I have Restless Legs so I can’t take “off the counter cough meds”.

 

I tried to take a picture of it, but can’t figure out how to include it!!

thanks for sharing James!

]]> ad6e7e2b8323535bc3918bc4572047f1 Maureen replied to the discussion Body aches in the forum Welcome Lounge https://pulmonaryfibrosisnews.com/forums/forums/topic/body-aches/#post-29955 Fri, 17 Sep 2021 15:01:33 -0500 Reply to Body aches

Rebecca, thanks for sharing! I will take your advice & start monitoring what I’m eating to see if there is a correlation. I didn’t think of that!!

 

Stay safe!

Maureen

]]> f64aa65b88ad3a6d837f198e116c0bcd Maureen replied to the discussion Body aches in the forum Welcome Lounge https://pulmonaryfibrosisnews.com/forums/forums/topic/body-aches/#post-29954 Thu, 16 Sep 2021 14:22:40 -0500 Reply to Body aches

Thanks Patricia for sharing your experience. My O2 (oxygen) has registered normal. What was/is your readings? I take CBD & it is very effective to ease the pain. I need to wait till January for a 2nd CT scan to confirm the diagnosis. I do have a Cpap that I use every day.

I am so grateful that you shared your experience. I don’t feel so alone… Read more

]]> f44980a87f5c6e3d4e4abb8b896a979c Maureen replied to the discussion Body aches in the forum Welcome Lounge https://pulmonaryfibrosisnews.com/forums/forums/topic/body-aches/#post-29788 Thu, 02 Sep 2021 16:04:36 -0500 Reply to Body aches

Madonna, that sounds very painful. Mine feels like the muscles ache. No joint pain. I use CBD oil several times a day. It does control the full body aches. Just not sure this relates to PF that’s why I am asking.

Hope today is a pain free day for you Madonna!

]]> 3ccfc57fdee66ac54762954b892608f7 Maureen started the discussion Body aches in the forum Welcome Lounge https://pulmonaryfibrosisnews.com/forums/forums/topic/body-aches/ Wed, 01 Sep 2021 15:33:32 -0500 Body aches

Anyone have any suggestions about body aches. I wake up during the night with them or it will hit during the day. It feels like getting the flu- with body aches. Yes I have been checked for COVID-negative. Do others have this?

Thanks in Advance

Maureen

]]> 0dd39f5834c1d504cf033123f17f2ba6 Maureen replied to the discussion What to ask the doctor? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/what-to-ask-the-doctor/#post-29234 Thu, 15 Jul 2021 19:03:09 -0500 Reply to What to ask the doctor?

I am waiting too for a diagnosis- which is leaning towards PF. My respiralogist said I need a second CT scan (1yr apart) to confirm. So they may not have all the answers at your 1st visit. Keep us updated!

]]> c0d677a56cf1dfee2d284a3423408bb0 Maureen replied to the discussion Looking for answers in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/looking-for-answers/#post-29160 Thu, 08 Jul 2021 15:50:09 -0500 Reply to Looking for answers

I am on this crazy road of diagnosis. My GP said all signs are looking like PF. My respiralogist says my ERV at 16% is due to abdominal fat pressing on my diaphragm ( like a pregnant woman). She says the person who interrupted my breathing test used the wrong word when he wrote ” severely  reduced 0.16L” so now I have to wait for a 2nd CT scan… Read more

]]> b59bec970aba011efdaeccb1c23b4b40 Maureen and Charlene are now connected https://pulmonaryfibrosisnews.com/forums/activity/p/28009/ Sat, 26 Jun 2021 11:22:39 -0500 0 b11743740151b875dd42ece1577cfb5f Maureen posted a new activity comment https://pulmonaryfibrosisnews.com/forums/activity/p/27977/#acomment-28008 Sat, 26 Jun 2021 10:48:20 -0500 Thanks Charlene. Waiting anxiously to talk to my respiralogist on Wednesday. The GP said the breathing test results are pointing to PF because my ERV is severely low. She already told me that the 2 drugs available aren’t very effective. She also said it would be early stage. I am very much into alternative medicine to help with my doctors.… Read more

In reply to - Maureen became a registered member ]]> 646f6a42e421737d913f7ec9ad326d54 Maureen became a registered member https://pulmonaryfibrosisnews.com/forums/activity/p/27977/ Fri, 25 Jun 2021 14:42:30 -0500 2