Suddenly, everything insurance-related is getting more and more difficult. I am a St. of WI retiree and found two transplant centers who no longer, as of last month, will accept our good insurance. I do not know about this particular situation, but I do know that it’s disturbing that so many are suddenly having insurance issues. What’s the… Read more

I am glad to finally read where others are having issues with bending over! I asked my physician and the pulmonary rehab therapist why I could NOT put any pressure whatsoever on my lower abdomen – and bending over to put shoes on is impossible. They all seemed mystified why I could not, and actually felt pain/cramps. I still do not know why? Is… Read more

Mike: can I ask how old you are? I keep wondering when my cohorts post these interesting situations, and since I am awaiting news at 73, I just am so curious how it goes for others. Thank you.

Mary

 

Hi Russel; It all sounds so scary for sure but when you read about people who have undergone the surgery and it’s behind them, it is extremely encouraging. I do not know how old you are, but I am 73 and being evaluated for a single lung. However, I manage my symptoms very well right now – and so not sure of next steps. I have no other… Read more

HI — I was diagnosed spring of 2021, after noticing I could do literally nothing without becoming totally out of breath. It was a sudden change for me, as I had been, even at 73, quite active. I have no other health issues, so this was huge change for me. I sat around and babied myself from May-July. My Pulmonary dr said he was recommending… Read more

So sorry you have had these feelings. My mother passed from IPF and at 73, I was just diagnosed in May after having excellent health most all my life. I just got so sick with what I thought was bronchitis that left me exhausted and short of breath for two months. I am not on meds …yet…but I did enroll in the Pulmonary Rehab program through… Read more

Very touching to read of your journey. Thank you.

Mary

 

Before my diagnosis this summer, I initially came in with a cough that got to the point where my entire body ached and I threw up. My regular dr was out, but a D.O. came in and heard me – she said to try over-the-counter allergy medication. I thought it was worth a try – so I bought Allergen and Flonase nasal spray. My life became worth… Read more