The side effects I had with Esbriet were spells of diarrhea and a complete lack of energy.  I also do a lot of gardening and try to spend a lot of time outdoors.  The fear of a reaction from the sun with Esbriet had me slathering myself with sunscreen a couple of times a day.  I started researching the benefits shown in the Esbriet trials in… Read more

I was diagnosed 2 years ago.  I am now 66.  Took Esbriet for one month and quit.  I started out building up stamina on an elliptical after I got off the Esbriet.  Exercising for 30 minutes at a low tension.  After about 6 months I was up to 60 minutes a day.  I do not overextend myself just a steady work out at a comfortable pace.  I now am up… Read more

My pulmonologist currently has two ipf patients who were diagnosed 10 years ago.  The longest patient case he has ever had is 17 years.  I have interpreted his guidance to believe that the disease acts differently in different people.  It is also dependent upon how well you take care of yourself and any other ailments you might have.  I myself… Read more

Take a look at IQ air.  They have several that fit various rooms.   I have IPF and allergies.  Long before diagnosed with IPF, to control my allergies at night I put an IQ air purifier in my bedroom.  Noticed an allergy difference within a week.  Replacement filters are pricy but are only needed about once a year.  Have had mine for 4 or more… Read more

I am a newly diagnosed 64 year old IPF patient who was first diagnosed in early August 2020 and who started Esbriet on Aug 19th.  Prior to my diagnosis I had noticed a shortness of breath and coughing.  Before proceeding to a pulmonologist I first went to a cardiologist to see if my issues were heart related.  My heart was okay but I did have a… Read more