I have it!!! My pulmonologist prescribed ipratropium bromide, a nasal spray with minimal or no rebound effect. I works well.

It took me 10 years to get to this point but I have two concentrators set for 14-16. You can’t OD.

I’ve been evaluated twice. The first time I was on the transplant list for over 7 years but was taken of because I was too stable. I went through the second evaluation and was told I was too old (79). The rationale was that the survival rate with my age and condition was less than 50%. I didn’t like it but it made sense.

I’ve had IPF since 2016 and have had two types of cough. The first was what got me to a diagnosis and lasted several years, and was a low level nagging cough. It finally got controlled when my pulmonologist prescribed benzonatate (Tessalon Perles.) That worked like a charm.

Last year I got pneumonia and the cough went away, to be replace by a…

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The term “life span” is often used incorrectly. The actual term should be “average life expectancy” which normally quoted base on a specific age. E.g. the average life expectancy of an American male AT BIRTH is around 76 years. However, the average life expectancy of a 80 year old male is close to 88. The AVERAGE person will likely live…

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As far as I know the only alternative is Esbriet, which didn’t  work for me so I’m back on OFEV. It’s been over 6 year. I have the usual GI issue but not nausea. However, the GI issues and loss of appetite meant that I’ve lost about 85 pounds.

Some 10-12 years ago I was diagnosed with that. After getting rid of our birds, plus therapy, I got over it for a couple of  years, then started again. This time it was diagnosed as IPF (7 years ago.) My current pulmonologist says that a) it is a  know precursor to IPF and b) treating it may prevent it progressing to IPF.

I noticed that the… Read more

Rene, my experience is like yours. I was on OFEV for 6 years and my tests remained pretty stable. I did have the usual side effects and lost some 75 pounds, not that I didn’t need to.

At the end of last year my insurance told me I had to switch to Esbriet. I did – it caused the opposite side effect of OFEV – serious constipation.

In 4 months… Read more

Can you give some suggestions on finding a national provider? Or names?

I did a Google search on “National Oxygen Providers” but I’m not sure I’m finding anything worthwhile. I have a portable oxygen concentrator which I can use while traveling but I would like a continuous flow one while on vacation. They have been difficult to find and what… Read more