Pulmonary Fibrosis News Forums | Majella Callaghan | Activity https://pulmonaryfibrosisnews.com/forums/members/halocallgmail-com/activity/ Activity feed for Majella Callaghan. Tue, 14 Apr 2026 12:28:23 -0500 https://buddypress.org/?v=2.20.0 en-US 30 hourly 2 f92d263fc05c1b128d022a1ef1441c29 Majella Callaghan replied to the discussion Toxic Positivity When Living with Pulmonary Fibrosis in the forum Welcome Lounge https://pulmonaryfibrosisnews.com/forums/forums/topic/toxic-positivity-when-living-with-pulmonary-fibrosis/#post-25905 Sat, 24 Oct 2020 18:34:44 -0500 Reply to Toxic Positivity When Living with Pulmonary Fibrosis

Yes, I have come across it with my extended family.  For example,  They say things like ‘you sound really good today’ when I’m speaking on the phone with one of them.  I might have a coughing fit during the conversation with them but that doesn’t seem to make me any worse to them.  But I can understand that they are only trying to be positive… Read more

]]> b5bb16957017f0da45a3826e4ed21e34 Majella Callaghan replied to the discussion Hair thinning: a side effect of Ofev? in the forum Ofev (Nintedanib) https://pulmonaryfibrosisnews.com/forums/forums/topic/hair-thinning-a-side-effect-of-ofev/#post-25906 Sat, 24 Oct 2020 15:51:28 -0500 Reply to Hair thinning: a side effect of Ofev?

I was on Ofev for about 1 and a half years and came off it in June this year as it was causing gastric problems with weight loss of about 1 stone over a year.  As I am a small build, I could not afford to lose  much more weight.  My Consultant took me off it.  I noticed my hair thinning over that time but I am still losing hair since I came… Read more

]]> 08d21bc02daefc3fee435fd74662d829 Majella Callaghan posted a new activity comment https://pulmonaryfibrosisnews.com/forums/activity/p/21612/#acomment-21760 Sun, 09 Aug 2020 23:35:59 -0500 Hi Cheryl, sorry to hear about your condition and yes it is easy to become dependent on the 02. I am using it most of the time as I become very SOB when I do something like feeding my cat or making a cup of Tea, then have to rush back to where my 02 is. I have a trolley but find it very cumbersome dragging it around. My fatigue level still… Read more

In reply to - Majella Callaghan posted an update I have had a very difficult time with my lungs since May of this year. I live in the West of Ireland which has variable weather and since May, there has been lots of white […] ]]> bdc44ee08933434733fc79427d8340fb Majella Callaghan posted a new activity comment https://pulmonaryfibrosisnews.com/forums/activity/p/21612/#acomment-21759 Sun, 09 Aug 2020 23:14:55 -0500 Hi Mark, thanks for your reply. My experience sounds similar to what happened with you. I unfortunately haven’t gone back to my previous state and using 02 most of the time except I may walk out to my back garden to feed my cat, but then the SOB kicks in badly and have to rush indoors to use the 02 to get my breath back! It’s a very scary… Read more

In reply to - Majella Callaghan posted an update I have had a very difficult time with my lungs since May of this year. I live in the West of Ireland which has variable weather and since May, there has been lots of white […] ]]> 1c0dda0c0157c8950c4c2875b0d0fbf1 Majella Callaghan posted an update: I have had a very difficult time with my lungs since May […] https://pulmonaryfibrosisnews.com/forums/activity/p/21612/ Sat, 01 Aug 2020 16:20:26 -0500 I have had a very difficult time with my lungs since May of this year. I live in the West of Ireland which has variable weather and since May, there has been lots of white fluff / very fine particles flying around in the air. My SOB took a dive, Oxygen down to 75 at times, with extreme fatigue, and weakness in limbs especially my legs. … Read more

]]> 5 76ad7107c9cce542f7b615832f301e93 Majella Callaghan posted an update: Just typed a lengthy update and have lost it! Does […] https://pulmonaryfibrosisnews.com/forums/activity/p/21322/ Mon, 20 Jul 2020 18:28:48 -0500 Just typed a lengthy update and have lost it! Does anyone know if I can retrieve it?

]]> 1 4c879e49899bb8fb13b3d39e2cf54df4 Majella Callaghan posted a new activity comment https://pulmonaryfibrosisnews.com/forums/activity/p/12784/#acomment-12790 Tue, 04 Jun 2019 22:16:37 -0500 Thanks Mark.

In reply to - Majella Callaghan became a registered member ]]> d435f2987cc1e05a89706accd31d1122 Majella Callaghan became a registered member https://pulmonaryfibrosisnews.com/forums/activity/p/12784/ Tue, 04 Jun 2019 20:06:08 -0500 2