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  • Majella Callaghan posted a new activity comment 1 month, 1 week ago

    Hi Cheryl, sorry to hear about your condition and yes it is easy to become dependent on the 02. I am using it most of the time as I become very SOB when I do something like feeding my cat or making a cup of Tea, then have to rush back to where my 02 is. I have a trolley but find it very cumbersome dragging it around. My fatigue level still very…[Read more]

  • Majella Callaghan posted a new activity comment 1 month, 1 week ago

    Hi Mark, thanks for your reply. My experience sounds similar to what happened with you. I unfortunately haven’t gone back to my previous state and using 02 most of the time except I may walk out to my back garden to feed my cat, but then the SOB kicks in badly and have to rush indoors to use the 02 to get my breath back! It’s a very scary con…[Read more]

    • Hello Bernie, gotta watch your oxygen level. I hope you begin the evaluation process soon. It is always better to go through the evaluation process when you are relatively healthy. Keep me up to date on things are going. Mark

  • I have had a very difficult time with my lungs since May of this year. I live in the West of Ireland which has variable weather and since May, there has been lots of white fluff / very fine particles flying around in the air. My SOB took a dive, Oxygen down to 75 at times, with extreme fatigue, and weakness in limbs especially my legs. On…[Read more]

    • Hello Majella, I can relate to your experience. You may be in the midst of an exacerbation as I was. Something may have triggered your fibrosis to get worse. Sometimes these exacerbations are acute and you may go back to your previous state. Sometimes the exacerbation causes you to be in a new normal. This is what happened to me and I subsequently…[Read more]

      • Hi Mark, thanks for your reply. My experience sounds similar to what happened with you. I unfortunately haven’t gone back to my previous state and using 02 most of the time except I may walk out to my back garden to feed my cat, but then the SOB kicks in badly and have to rush indoors to use the 02 to get my breath back! It’s a very scary con…[Read more]

        • Hello Bernie, gotta watch your oxygen level. I hope you begin the evaluation process soon. It is always better to go through the evaluation process when you are relatively healthy. Keep me up to date on things are going. Mark

    • Hi Majella. In reading your post, I found it very concerning as I too have symptoms that basically mirror yours. I just passed my one year post op of VATS (rt. lower lung removed for CA) and diagnosed in 2017 with PF, which I did nothing about until last year.
      I handled my recovery with minimal O2 use and didn’t use it or think I needed it until…[Read more]

      • Hi Cheryl, sorry to hear about your condition and yes it is easy to become dependent on the 02. I am using it most of the time as I become very SOB when I do something like feeding my cat or making a cup of Tea, then have to rush back to where my 02 is. I have a trolley but find it very cumbersome dragging it around. My fatigue level still very…[Read more]

  • Majella Callaghan posted an update 2 months ago

    Just typed a lengthy update and have lost it! Does anyone know if I can retrieve it?

    • Hi Majella, if it wasn’t saved in the system there is nothing that can be done. I am sorry you experienced this problem. I have been there before several times. Sorry, Mark.

  • Majella Callaghan posted a new activity comment 1 year, 3 months ago

    Thanks Mark.

  • Majella Callaghan became a registered member 1 year, 3 months ago

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