Biography

Name

Majella Callaghan

Nickname

majella-callaghan

Year of Birth

20/08/1956

Gender

Female

Location

Ireland

Relationship

Patient

Short Bio

Diagnosed with Ipf in 2017, had shortness of breath, chest infections, allergy type symptoms, postnasal drip, unproductive cough, and waking at night with cough.  On various inhalers and low dose steroids, as well as Ofev.  Is this diagnosis as bad as it appears?  Are there any patients who have any positive comments about their diagnosis and who havelived longer than 5 years with the condition?

Type of Diagnosis

IPF

Treatment / Medical Facility

Ofev, pulmicort, steroids low dose.

Current medication regimen

As abov

Lung transplantation status

considering later

Supplemental Oxygen

no

Best advice for PF symptom management

Exercise daily, 2000 steps in one session, up to 10000 steps a day.  Exercises recommended by physio which I try to do each day if not too tired.

Are you currently taking an anti-fibrotic medication?

yes

How did you find us?

PF News Website

How long have you or the person that you are caring for had PF?

SOB for quite some time, possibly 7 – 8 years or more.

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