Pulmonary Fibrosis News Forums | janie-555 | Activity https://pulmonaryfibrosisnews.com/forums/members/janiemiller/activity/ Activity feed for janie-555. Thu, 16 Apr 2026 23:34:32 -0500 https://buddypress.org/?v=2.20.0 en-US 30 hourly 2 006b87ede17c8cc0f0095abdc911ba1f janie-555 replied to the discussion How do you handle comments that discount the seriousness of your PF? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/how-do-you-handle-comments-that-discount-the-seriousness-of-your-pf/#post-38377 Thu, 22 May 2025 01:48:42 -0500 Reply to How do you handle comments that discount the seriousness of your PF?

I appreciate Dmeade’s comment to “You don’t look sick.” Thank you is a great response to that! Part of my issue with the well meaning comments and avoiding my health challenges is that I get It from family members, my sister and my daughter too. A couple days ago was one of the first timesI heard my daughter recognize my lack of energy. We were…

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]]> b90811056ba48e8c35438c5bdf47e7af janie-555 replied to the discussion Let's talk about clinical trials in the forum Clinical Trials https://pulmonaryfibrosisnews.com/forums/forums/topic/lets-talk-about-clinical-trials/#post-38286 Sat, 03 May 2025 04:35:52 -0500 Reply to Let's talk about clinical trials

I do take research study trials not clinical trials that I would be taking a different medication. I take so many prescriptions now and am very sensitive to even the slightest changes in the meds. So for that reason, I don’t feel I’m a good candidate for trials such as these.

]]> 70d0623827010599a4b844d8b4686914 janie-555 replied to the discussion Post-nasal Drip: Another Ailment to Deal With in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/post-nasal-drip-another-ailment-to-deal-with/page/2/#post-38174 Fri, 04 Apr 2025 22:53:08 -0500 Reply to Post-nasal Drip: Another Ailment to Deal With

I’ve been diagnosed with PF since 2017, due to a secondary autoimmune called Sjögrens, which a couple of the side effects of Sjögrens being dry eyes & dry mouth etc. I have had post nasal drip for the longest time. Although my nose is nearly always completely clear, it comes down the back of my throat. Being that Sjögrens dries my eyes and…

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]]> 33cd201e9e497bc6f37d6c1c13537fe1 janie-555 replied to the discussion loud coughing in the forum Healthcare Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/loud-coughing/#post-37899 Fri, 31 Jan 2025 21:12:31 -0600 Reply to loud coughing

Hello Friends,

I’m 62 and was diagnosed late 2018 with IPF due to Sjögrens, and yes, I believe coughing and IPF go hand in hand. I too have some people think it’s a sneezing thing and tell me “Bless You.” Most of the time, I have a moment before the hard coughing starts, if I’m with someone, I take that moment and say, “I’m about to cough like…

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]]> af87268fe9e8a612600ff2f58c25b444 janie-555 became a registered member https://pulmonaryfibrosisnews.com/forums/activity/p/38919/ Tue, 30 May 2023 14:22:33 -0500 0