Pulmonary Fibrosis News Forums | Jay | Activity https://pulmonaryfibrosisnews.com/forums/members/jayrom0807/activity/ Activity feed for Jay. Thu, 23 Apr 2026 22:55:40 -0500 https://buddypress.org/?v=2.20.0 en-US 30 hourly 2 d189c588268dd3e1c1d04e9fb12c7ac0 Jay replied to the discussion Afraid of the unknown in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/afraid-of-the-unknown/#post-25960 Thu, 29 Oct 2020 17:48:02 -0500 Reply to Afraid of the unknown

Hi,

Yes they did a high resolution scan with and without contrast. I was hoping it was a virus or something that would show up on a scan but according to the radiologist there is nothing there. There are about 80-100 photos in the report. When I went to the ER 12 days prior to the CT they said that they found mild bronchitis on the chest… Read more

]]> d4110dcd6166db27de762cde70ac7d19 Jay replied to the discussion Afraid of the unknown in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/afraid-of-the-unknown/#post-25943 Thu, 29 Oct 2020 00:59:44 -0500 Reply to Afraid of the unknown

Hi,

The pulmonologist just wanted the final report. He didn’t look over the scans but I did send him a few photos of the scans. He scheduled me for a breathing test. I’m still concerned because I’ve seen zero improvement in my shortness of breathe. I’m still feeling very run down. My throat always hurts and sometimes it feels like it’s closing… Read more

]]> d347d9f807d498fdc2720b4b8b55be2b Jay replied to the discussion Afraid of the unknown in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/afraid-of-the-unknown/#post-25900 Fri, 23 Oct 2020 04:21:30 -0500 Reply to Afraid of the unknown

Hi,

The primary care physician sent me a message that the scan looked normal. My pulmonologist wants me to forward him the report which I will do once I have it. He said primary care doctors miss stuff all the time. My question is are primary care physicians wrong often when it comes to reading and interrupting these scans ? Is pulmonary… Read more

]]> b5f03e0604940d11ee7c7745e210a730 Jay posted a new activity comment https://pulmonaryfibrosisnews.com/forums/activity/p/23036/#acomment-23048 Thu, 22 Oct 2020 01:58:10 -0500 Thanks. Hoping for the best.

In reply to - Jay became a registered member ]]> 36f86cc58b6f0cc515eff5b10443276f Jay started the discussion Afraid of the unknown in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/afraid-of-the-unknown/ Wed, 21 Oct 2020 23:50:03 -0500 Afraid of the unknown

Hi,

 

I’m glad I found this forum. I have had shortness of breathe for years but it has worsened over the past 6 months. I spoke to a pulmonologist for the first time 6 months ago. He spoke to me and ordered a regular chest X-ray. He stated it was normal and I had nothing to worry about. 3 weeks I noticed I could barely walk up the stairs… Read more

]]> a77a8f5c7102fbc1b7026a014b6182e0 Jay posted a new activity comment https://pulmonaryfibrosisnews.com/forums/activity/p/23036/#acomment-23040 Wed, 21 Oct 2020 23:35:45 -0500 Hi,
I know the survival rate is bad. My pulse ox is always above 95% even with exercise but I still literally feel out of breathe and like I’m on my death bed. I don’t have a cough. Chest pain and I feel my throat closing on me. I feel tired from even bending over or brushing my teeth.

In reply to - Jay became a registered member ]]> 57380ab14f205ff06f29b831fbcb780a Jay posted a new activity comment https://pulmonaryfibrosisnews.com/forums/activity/p/23036/#acomment-23039 Wed, 21 Oct 2020 23:32:59 -0500 Hi,
Thanks for letting me join. I’m totally freaking out right now. I saw a pulmonologist 6 months ago and he order a chest X-ray. He said I was fine. I still feel out of breathe and a general fatigue. I just had another Chest X-ray that showed bronchitis according to the ER doc. Yesterday I had an appointment and the doctor said he wants to… Read more

In reply to - Jay became a registered member ]]> a05b7df441ffa5ee0d8ff53c5da08692 Jay became a registered member https://pulmonaryfibrosisnews.com/forums/activity/p/23036/ Wed, 21 Oct 2020 23:19:11 -0500 5