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Jay

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@jayrom0807

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    Jay replied to the topic Afraid of the unknown in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 2 years, 7 months ago

    Hi,

    Yes they did a high resolution scan with and without contrast. I was hoping it was a virus or something that would show up on a scan but according to the radiologist there is nothing there. There are about 80-100 photos in the report. When I went to the ER 12 days prior to the CT they said that they found mild bronchitis on the chest X-Ray…[Read more]

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    Jay replied to the topic Afraid of the unknown in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 2 years, 7 months ago

    Hi,

    The pulmonologist just wanted the final report. He didn’t look over the scans but I did send him a few photos of the scans. He scheduled me for a breathing test. I’m still concerned because I’ve seen zero improvement in my shortness of breathe. I’m still feeling very run down. My throat always hurts and sometimes it feels like it’s closing u…[Read more]

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    Jay replied to the topic Afraid of the unknown in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 2 years, 7 months ago

    Hi,

    The primary care physician sent me a message that the scan looked normal. My pulmonologist wants me to forward him the report which I will do once I have it. He said primary care doctors miss stuff all the time. My question is are primary care physicians wrong often when it comes to reading and interrupting these scans ? Is pulmonary fibrosis…[Read more]

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    Jay posted a new activity comment 2 years, 7 months ago

    Thanks. Hoping for the best.

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    Jay started the topic Afraid of the unknown in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 2 years, 7 months ago

    Hi,

     

    I’m glad I found this forum. I have had shortness of breathe for years but it has worsened over the past 6 months. I spoke to a pulmonologist for the first time 6 months ago. He spoke to me and ordered a regular chest X-ray. He stated it was normal and I had nothing to worry about. 3 weeks I noticed I could barely walk up the stairs w…[Read more]

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    Jay posted a new activity comment 2 years, 7 months ago

    Hi,
    I know the survival rate is bad. My pulse ox is always above 95% even with exercise but I still literally feel out of breathe and like I’m on my death bed. I don’t have a cough. Chest pain and I feel my throat closing on me. I feel tired from even bending over or brushing my teeth.

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    Jay posted a new activity comment 2 years, 7 months ago

    Hi,
    Thanks for letting me join. I’m totally freaking out right now. I saw a pulmonologist 6 months ago and he order a chest X-ray. He said I was fine. I still feel out of breathe and a general fatigue. I just had another Chest X-ray that showed bronchitis according to the ER doc. Yesterday I had an appointment and the doctor said he wants to c…[Read more]

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    • Profile picture of Jay
      Jay replied 2 years, 7 months ago

      Hi,
      I know the survival rate is bad. My pulse ox is always above 95% even with exercise but I still literally feel out of breathe and like I’m on my death bed. I don’t have a cough. Chest pain and I feel my throat closing on me. I feel tired from even bending over or brushing my teeth.

    • Profile picture of Mark Koziol
      Mark Koziol replied 2 years, 7 months ago

      Hello Jay, I’m sorry to hear about your situation. I’m hoping for the best for you. You are young to be going through this ordeal. I’m hoping the CT reveals NO SCARRING. I’m praying for you. Good luck tomorrow! Please keep us updated. Mark

      • Profile picture of Jay
        Jay replied 2 years, 7 months ago

        Thanks. Hoping for the best.

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    Jay became a registered member 2 years, 7 months ago

    • Profile picture of Mark Koziol
      Mark Koziol replied 2 years, 7 months ago

      Hello Jay, thank you for joining your pulmonary fibrosis forum. Congrats on being the 2000 member. Welcome!

    • Profile picture of Jay
      Jay replied 2 years, 7 months ago

      Hi,
      Thanks for letting me join. I’m totally freaking out right now. I saw a pulmonologist 6 months ago and he order a chest X-ray. He said I was fine. I still feel out of breathe and a general fatigue. I just had another Chest X-ray that showed bronchitis according to the ER doc. Yesterday I had an appointment and the doctor said he wants to c…[Read more]

      • Profile picture of Jay
        Jay replied 2 years, 7 months ago

        Hi,
        I know the survival rate is bad. My pulse ox is always above 95% even with exercise but I still literally feel out of breathe and like I’m on my death bed. I don’t have a cough. Chest pain and I feel my throat closing on me. I feel tired from even bending over or brushing my teeth.

      • Profile picture of Mark Koziol
        Mark Koziol replied 2 years, 7 months ago

        Hello Jay, I’m sorry to hear about your situation. I’m hoping for the best for you. You are young to be going through this ordeal. I’m hoping the CT reveals NO SCARRING. I’m praying for you. Good luck tomorrow! Please keep us updated. Mark

        • Profile picture of Jay
          Jay replied 2 years, 7 months ago

          Thanks. Hoping for the best.

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