Recently I read a post from someone who had been to Panama to get the Stem cell therapy. I didn’t mark the post of write-down the name. I am contemplating going to Panama to get that treatment and would like to communicate with patients that have tried that therapy. If you are or know someone who has done that, please contact me on this forum… Read more

John, when you say 86 walking ,what does the pulse setting of 5 bring it up to?  Your info is very helpful to me as is seems that you and I are fairly close in O2 requirements. Are you on Ofev or Esbriet  for your lungs? Also, where did you read about the battery issue with the G5?  That could be factor in which one I chose.

You make a good… Read more

Thanks so much Judy. I think I am going to try the G5 if they have extra batteries.  Don’t know if you saw the post from John Styles but he says they aren’t selling individual batteries except with the G5 That would be an issue.

John S, what is your normal at rest sats? Trying to compare my situation to yours. I too, would like to go to Europe but have to find something that will get me there.  John M

Jim, I appreciate your observation but I’m not sure if that’s necessarily true in my case, anyway. If you have been following Judy Fraser, the new G5 seems to be working for her. I am hoping that the minimal bolus that is given as a perfectly timed dose will meet my O2 needs at the present time. With constant flow, one has no idea how much… Read more

Thanks so much for your info Judy. Do have feel for where you were at sats wise when you flew and didn’t  need to use O2. By that I mean how were you doing, sats wise, at rest and walking at that time? I’m really surprised you didn’t need O2 while you were in the air. As I mentioned in my earlier post, mine really dropped once we got to… Read more

Judy, I take it from your posts that you haven’t flown with the G5 yet. So, which model did use use to fly and what were your experiences with it as to O2 sats, etc. Did you test it without the O2 on and then after moving about the cabin? What settings did you use? If it worked for you why are you switching to the G5? Apologize for all… Read more

Bill  S, thanks for your question. My at rest at home is around 95 +or – 1. As Bill K mentioned, all commercial a/c cabins will maintain a cabin altitude of 6-8000′ regardless of how high above that altitude the plane is flying. If it should increase above 10000′, the oxygen masks in the overhead will deploy for the passengers use. That is… Read more

Thanks Judy, that really helps me get a good idea of where I might be with a G5. Like you when I’m sitting around my sats are 95 but when walking more than a few feet my sats drop to the mid to low 80s. It sounds like it will work for you flying on an airplane and with minimal exertion. I would guess that it will work for me as well. The… Read more

Tks Bill for the warning. I get what you are saying and I too believe there is too much BS and hyperbole surrounding these portable systems. However, we want to be mobile and somehow we need to find out what machine will meet our needs currently.  As I mentioned to Judy, her experiences, along with her data will maybe give someone with a… Read more

Judy, thanks for your response. This is exactly what I am trying to figure out before I buy a portable unit. Right now I have a portable tank which has a pulse setting up to 6. While riding a bike gently on level pavement, I drop to 87%. What I am hoping is that the new pulse units will do a better job of delivering the bonus and it will keep… Read more

That’s what I did but got “ no results” but when I used the search function at the the top, it worked as you describe. Tks John M

Ben, I had a similar experience last year before getting my O2. Went on a 2 hr flt and as soon as we got to altitude (36000’) which is 8-10,000’ cabin alt I put my finger spox meter on and it read 85-87%. Worst thing was I was setting all the way in the first row of seats and because of COVID they closed the front restroom (head for you Navy… Read more

Charlene, When I use the search option at the top I get results as you indicated. But using the search box on the right side I get nothing.  Hope this helps. John M

Tks Charlene, I did try using the search function and got no replies. typed POC and next I put in Portable oxygen concentrators and got nothing. Not sure what I am doing wrong? I will try again with your suggestions.

I was hoping to hear from some who had purchased one and their experience ;  i.e. maintenance, customer service, price, etc.

I… Read more

Tks Miriam, my concern is that the pulse dose will not be enough for me.  I have the small tanks now and it has a regulator that has a pulse and constant settings. On 2 constant I can move about fairly well and stay above 90 spox if I take it easy. But on pulse 4 or 5 I drop to 87-89 with same exertion. I have read that the newer pulse units… Read more

Would like some feedback on POCs as to which ones are reliable and individual responses as to their experience using it, including which delivery method works for them, pulse or constant flow. I am turned off by the ads on the internet and magazines. Seems to be a lot of hype and little facts.  Tks John M

I forgot to check the reply Box. Can someone fix that for me so I can know if someone replies to my post.  Tks  John

I was diagnosed with ILD in spring of 2011 and started on Cell Cept 1000 mg twice a day. I have had Rheumatoid Arthritis since 1987 and was on Methotrexate and Enbrel for a number of years. These two drugs were a game changer for me as I was able to play golf, ski and lead a pretty normal life. When the IPF diagnosis came I was taken… Read more