You don’t mention what type of cooking appliance you are using. Electric ranges, induction, convection, microwave do not emit any fumes from operation. Burning foods will add some indoor pollution but should be easily removed with an exhaust fan. Using the auto-clean function on some ranges might cause some fumes. However, the worst culprit… Read more

I was first diagnosed with IPF way back in 2012. Skipping to the topic of Ofev, I started taking Ofev about six years ago. It has been quite the journey. Side effects, contradiction with other meds…tales for another time. And recently, my provider also rejected me for continuation of Ofev. Reasons listed were an expired prescription.

Ran… Read more

DXD Jan 2012. Ended up losing my job, but was old enough to take retirement. Qualified for SS so did not have to face the uncertainty of looking for employment. Initially given a prognosis of 3-5 years possibly seven.

Early on, I investigated clinical trials thinking that they might give me an opportunity to prolong my life or at least… Read more

i was in the PRM trial. According to my research coordinator, the results were less than anticipated. It was determined that there were few if any benefit to patients to continue the trial.

rereading this and my post, I realized that I kind of avoided the question. When should I start anti-fibrotics? Your current pulmo advises against it until you get worse? Wow! I think I would get another opinion if possible. I mean, would a cardiologist advise you to wait for heart medications until you had a heart attack, if you are showing… Read more

I read everyone’s replies in this thread. And since I am an IP patient and take Ofev, my opinion is not much different.

One hesitation that I have in recommending Ofev is the price and coverage. Here in the good ol USA, price and copay can range quite a bit. I’m on Medicare and due to my limited income, qualify for a scholarship to pay… Read more