Dear Lori, My advice to you would be to live life to the fullest.  Do that bucket list. Have no regrets. And don’t take no for an answer on a lung transplant. I speak from experience as I am now a young widow of a husband who had IPF. Your friend is probably @ a loss of how to comfort you. Sometimes it is hard to find the right words.… Read more

My husband passed in May of this year. He was diagnosed with IPF 4 years ago. He was 64years old & was denied for a lung transplant due to having a bout with skin cancer in 2019. It was a steady decline for him, quality of life lessened & the need for 02 increased. He went on hospice in February of this year. The last few months his… Read more

Yes, have definitely noticed the clubbing in my husband’s toes. Gradual changes over the progression of the disease. Diagnosed in 2019. Is not painful.

So touching to read the stories shared about Caregivers. Just today, my husband agreed to have a CNA come into our home to help him with bathing. This was a big step for him. His visiting nurse suggested it for a couple of reasons. The first was to see if having a professional assist with this task would help him to become less O2 depleted as… Read more

Thank you for the information on dry nose due to high oxygen concentrator. My husband also suffers with this & it makes breathing even more complex. He even gets frequent nose bleeds. He does use a nasal spray similar to Flonase & saline water spray. Will try some of the other suggestions in this forum.

Regarding the Life2000 Ventilator, we were disappointed with the results. We felt that it didn’t make enough of a difference in our situation. My husband has IPF, perhaps it would work better for someone with COPD. It didn’t recuperate my husband any faster once he depleted his oxygen while being active. The website is… Read more

Regarding the Inogen, we were satisfied, have the G3. There are 2 screen filters that should be cleaned 1x wkly & 2 columns that act like filters. The columns need to be replaced 1x yearly & cost $100.00 for the pair. You can purchase on Inogen site or through Amazon.

I believe you can @ age 64 on disability.

Has anyone heard of a Life2000 Ventilator? Our Pulmonarligist recommended to try it rather then a higher oxygen concentrator.

This article caught my eye as my husband has also had a deterioration in o2 levels. He has been on 5 liters for quite some time now & when he went for a routine visit in December to the Pulmonarligist I questioned if there was a stronger O2 concentrator that he could have. They recommended we hold off if possible & revisit this subject @ his… Read more