Pulmonary Fibrosis News Forums | Lawrence | Activity https://pulmonaryfibrosisnews.com/forums/members/lawrence/activity/ Activity feed for Lawrence. Wed, 15 Apr 2026 17:04:12 -0500 https://buddypress.org/?v=2.20.0 en-US 30 hourly 2 93b8e63f6051cb86ce00fefee91e5f39 Lawrence replied to the discussion Shortness of breath and how to catch it in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/shortness-of-breath-and-how-to-catch-it/#post-34842 Thu, 06 Apr 2023 20:10:31 -0500 Reply to Shortness of breath and how to catch it

Hi Frank,  I have a stationary machine that will produce two and up to 10 liters. continuous flow.  I set it on 4 liters when lounging and crank it up to 6 liters when I’m active (such as going to the basement (stairs).  When you’re short of breath it’s natural to grasp for air through your mouth.  You just have to concentrate on inhaling… Read more

]]> 1989e82238228e7a329f693d5a22797c Lawrence replied to the discussion Oxygen Delivery System when needs go up in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/oxygen-delivery-system-when-needs-go-up/#post-34524 Thu, 02 Mar 2023 21:59:40 -0600 Reply to Oxygen Delivery System when needs go up

Sorry to hear  of your Mothers condition.  I’m 82 years old and have had this progressive condition for five years,  With the concentrator set at 4 L/m, My SPO2 level is around 96 when I’m relaxed, in a sitting position.  When I rise to go to the bathroom it can drop to the low 80’s.  Taking a number of deep breaths through the nose before… Read more

]]> 866f6bc08fdb9019a954e6d6d57d0dd2 Lawrence replied to the discussion The inevitable.... in the forum Welcome Lounge https://pulmonaryfibrosisnews.com/forums/forums/topic/the-inevitable/#post-34475 Wed, 22 Feb 2023 14:58:59 -0600 Reply to The inevitable....

Yes, we all should be able to openly discuss the end of life as it’s a road we all must travel, with no exceptions.  I’m going on eighty two years of age and have been living with the progression of this disease for around 5 years.  In the last year I’ve been hospitalized twice with pneumonia and on Oxygen 24/7.  The last being a ten day stay… Read more

]]> b8725c70ac7b79494f463c3bd3fd28a5 Lawrence replied to the discussion Do you take OFEV? Take our poll! in the forum Polls & Quizzes https://pulmonaryfibrosisnews.com/forums/forums/topic/take-ofev-take-poll/#post-31092 Fri, 18 Feb 2022 15:41:32 -0600 Reply to Do you take OFEV? Take our poll!

Yes

]]> 037fe9f44c38328134ce6cab43036a29 Lawrence replied to the discussion When will first treatment to repair scar tissue become available to humans in the forum Welcome Lounge https://pulmonaryfibrosisnews.com/forums/forums/topic/when-will-first-treatment-to-repair-scar-tissue-become-available-to-humans/#post-30558 Tue, 07 Dec 2021 21:26:56 -0600 Reply to When will first treatment to repair scar tissue become available to humans

Being as I’m eighty years old I don’t hold any hope for this medicine. Three years ago I was diagnosed with IPF, 35% reduced lung capacity and given a 5 year life expectancy. I was given a prescription of 300mg Ofev and the side effects were unbearable. The pomologist reduced the Ofev to 100mg and I’m tolerating that ok although the price… Read more

]]> c82f0408f6de168ae3750f2fa8791ca1 Lawrence became a registered member https://pulmonaryfibrosisnews.com/forums/activity/p/30301/ Wed, 03 Nov 2021 14:32:56 -0500 1