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Lorraine

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@lorraine

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    Lorraine replied to the topic Starting Ofev in the forum Ofev (Nintedanib) 2 years, 7 months ago

    @Thom and @charlene-marshall!!!

    Greetings both.

    All things considered, I am doing well and hope the same is the case on your ends.

    NYC flattened the COVID-19 curve and altho some things are still not opened, I have been spending a lot of time outside with friends and family. In fact, I just returned from Lake George where I went for a couple of…[Read more]

  • Profile picture of Lorraine

    Lorraine replied to the topic Corona virus in the forum Join the Discussion: Welcome to all PF/IPF Patients 2 years, 11 months ago

    https://www.nationaljewish.org/patients-visitors/patient-info/important-updates/coronavirus-information-and-resources/health-tips/allergies-cold-flu-or-covid-19-virus

  • Profile picture of Lorraine

    Lorraine replied to the topic Mental Health & COVID-19: A Check-In in the forum Coronavirus (COVID-19) and Pulmonary Fibrosis 2 years, 11 months ago

    @charlene-marshall

    Greetings Charlene:

    I welcome the idea of participating in a Zoom call.

    From my experience, Zoom calls are pleasant and an uplifting experience.

    While walking, I blast my Spotify playlist. I do not want to use my earbud, as I want to know if others are around, which is rare. I may try Sirus Radio, to mix things up and since…[Read more]

  • Profile picture of Lorraine

    Lorraine replied to the topic PSA Safe Grocery Shopping in COVID-19 Pandemic – UPDATED!!! – YouTube in the forum Coronavirus (COVID-19) and Pulmonary Fibrosis 2 years, 12 months ago

    @craftyone

    Hi Judy: You raise a valid point. People here have been identifying smaller supermarkets, or even deli’s, in their respective neighborhoods, who deliver. I hope your community has similar alternatives, cause it is getting harder and harder to schedule deliveries from PeaPod etc, and then the recipient must then wait a few weeks for…[Read more]

  • Profile picture of Lorraine

    Lorraine replied to the topic PSA Safe Grocery Shopping in COVID-19 Pandemic – UPDATED!!! – YouTube in the forum Coronavirus (COVID-19) and Pulmonary Fibrosis 2 years, 12 months ago

    @charlene-marshall

    Hi Charlene:

    I am doing well.

    First and foremost I am doing Extreme Social Distancing. Doing many virtual social events with Zoom, House Party, Facebook Messenger and Google Hangout. I also do virtual workouts with YMCA 360 and YMCA @ home.

    Thank you for your love and support of NYC!!!

    Stay safe and well

  • Profile picture of Lorraine

    Lorraine replied to the topic Mental Health & COVID-19: A Check-In in the forum Coronavirus (COVID-19) and Pulmonary Fibrosis 2 years, 12 months ago

    @charlene-marshall

    Hi Charlene:

    I am doing well, keeping busy and upbeat. Also, regularly connect with my 8 year old SILLY self!

    I find my various ZOOM groups to be very uplifting and fun. Also, enjoying my daily virtual YMCA classes. Today, I did an outside walk, enjoying the music of my Spotify playlist. I also limit COVID-19 television news,…[Read more]

  • Profile picture of Lorraine

    Lorraine replied to the topic PSA Safe Grocery Shopping in COVID-19 Pandemic – UPDATED!!! – YouTube in the forum Coronavirus (COVID-19) and Pulmonary Fibrosis 2 years, 12 months ago

    Hi Charlene and thank you.

    Unfortunately, and as you may know, things are not going well in NYC,with regard to the number of COVID -19 cases and deaths.

    However, I am doing my best to stay off the radar, by social distancing, and fortunately that is going well.

    Stay safe and well.

    Lorraine

  • Profile picture of Lorraine

    Lorraine started the topic Apple COVID-19 Screening Tool in the forum Coronavirus (COVID-19) and Pulmonary Fibrosis 2 years, 12 months ago

    “This tool can help you understand what to do next about COVID-19.

    Let’s all look out for each other by knowing our status, trying not to infect others, and reserving care for those in need.”

    Click link to Start Screening

    https://www.apple.com/covid19

  • Profile picture of Lorraine

    Lorraine started the topic PSA Safe Grocery Shopping in COVID-19 Pandemic – UPDATED!!! – YouTube in the forum Coronavirus (COVID-19) and Pulmonary Fibrosis 2 years, 12 months ago

    PSA Safe Grocery Shopping in COVID-19 Pandemic – UPDATED!!! – YouTube

    https://www.youtube.com/watch?v=sjDuwc9KBps

     

  • Profile picture of Lorraine

    Lorraine started the topic Have You Gotten Your Virtual Workout On? in the forum Coronavirus (COVID-19) and Pulmonary Fibrosis 2 years, 12 months ago

    Greetings All:

    While Social Distancing, on Staten Island, New York — I have been taking FREE Virtual YMCA classes.

    If interested, here are the websites: https://ymcanyc.org/ymca-home and https://ymca360.org/on-demand#/category/15

    Health & Fitness Videos: Live Workouts, Stretching & Yoga, Stretching and Yoga, For Seniors, Condition &…[Read more]

  • Profile picture of Lorraine

    Lorraine replied to the topic Mental Health & COVID-19: A Check-In in the forum Coronavirus (COVID-19) and Pulmonary Fibrosis 2 years, 12 months ago

    Some days <span class=”_5mfr” style=”box-sizing: border-box;”>💚</span> I’m doing great — other days 💙 I’m okay.

    I am trying to stay strong, but know as things worsen, that may be challenging.

    I live on Staten Island, New York — a 25 minute ferry boat ride to Manhattan.

    Currently there are 59,648 COVID cases in NYC and 965 deaths.

    On Sta…[Read more]

  • Profile picture of Lorraine

    Lorraine replied to the topic Corona virus in the forum Join the Discussion: Welcome to all PF/IPF Patients 3 years ago

    Well said Miltont! Keep safe.

  • Profile picture of Lorraine

    Lorraine replied to the topic Corona virus in the forum Join the Discussion: Welcome to all PF/IPF Patients 3 years ago

    I will avoid large crowds and unessential travel.

    Best wishes all!

     

  • Profile picture of Lorraine

    Lorraine replied to the topic Corona virus in the forum Join the Discussion: Welcome to all PF/IPF Patients 3 years ago

    I am afraid that Social Distancing will become my reality, especially if a 3′ distance, in public places is recommended … hopefully COVID-19 will burn out.

    I just wrote a text to my pulmonologist, asking for guidance, given I am 61, have ILD and a heart PT.

    In addition to the above postings, when in public places, I use a tissue or paper towel…[Read more]

  • Profile picture of Lorraine

    Lorraine replied to the topic just want to share some of my experience in the forum Canadians Living with Pulmonary Fibrosis 3 years, 2 months ago

    @jaimeluciano

    Hi Jaime:

    A lot of good information and advice on this thread, and I hope it brings positive results.

    I would like to add one other thing. I bought an adjustable bed a couple of years ago, prior to hip replacement surgery and find keeping my head elevated, while sleeping is an effective way to get rid of phlegm. Alternatively,…[Read more]

  • Profile picture of Lorraine

    Lorraine replied to the topic How The Apple Watch Can Assist Patients with Pulmonary Fibrosis in the forum Pulmonary Fibrosis Awareness & Advocacy 3 years, 3 months ago

    Hi Charlene: Glad to hear you are styling with the Apple 5. I am liking the functionality of the watch more and more. If I do decide to get one, I will let you know. Wishing you the best, Lorraine

  • Profile picture of Lorraine

    Lorraine replied to the topic How The Apple Watch Can Assist Patients with Pulmonary Fibrosis in the forum Pulmonary Fibrosis Awareness & Advocacy 3 years, 3 months ago

    Hi Charlene:

    Glad to hear you received the Apple watch for Christmas!!!

    If you were on the naughty list, there would be no hope for the rest of us. 🙂

    Which watch did you get?, I am leaning toward the 5 if/when.

    Best wishes,

    Lorraine

     

     

  • Profile picture of Lorraine

    Lorraine replied to the topic How The Apple Watch Can Assist Patients with Pulmonary Fibrosis in the forum Pulmonary Fibrosis Awareness & Advocacy 3 years, 3 months ago

    @charlene-marshall

    Hi Charlene:

    Glad to hear you are on the mend, but sorry to hear you had been sick and hospitalized.

    You will be the first to know if I am in need of additional support, I appreciate and value such resources. My therapy has made a difference!

    By the way it looks like I will be going to South Africa for a few weeks next year…[Read more]

  • Profile picture of Lorraine

    Lorraine replied to the topic How The Apple Watch Can Assist Patients with Pulmonary Fibrosis in the forum Pulmonary Fibrosis Awareness & Advocacy 3 years, 3 months ago

    Hi Charlene:

    I am doing well and hope you are too!

    Thank you for letting me know about available online support groups, I will let you know if/when I might be interested. I have been seeing a therapist 1:1 for a few months now and that has been helping (altho I still have my moments) and I am even socializing again.

    Happy holidays,

    Lorraine

  • Profile picture of Lorraine

    Lorraine replied to the topic How The Apple Watch Can Assist Patients with Pulmonary Fibrosis in the forum Pulmonary Fibrosis Awareness & Advocacy 3 years, 3 months ago

    Hi Charlene: Maybe a group FaceTime IPF chat is in our future. Ha.

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