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Margaret

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@magsween

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    Margaret replied to the topic Phase 3 Trial Shows Ofev Reduces Lung Function Decline In Patients With Fibrotic Lung Diseases in the forum Flash Briefings & Podcasts 2 years, 7 months ago

    Happy New Year’s to all and thank you for all your sharing!  I have to respond to this Ofev discussion … I share the responses of all the participants!  I was diagnosed with IPF in Jan.2015 … was on Ofev for almost two years…the 150 mg messed with my liver enzymes but the 100 was o.k. that way.  I felt like I was sacrificing quality of life -…[Read more]

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    Margaret posted a new activity comment 3 years, 3 months ago

    Hi Mark! Thanks for your response and questions. Actually, I’m o.k. with the cut-off at 70…even though I know everyone is different! I don’t feel like an “old 78” … still “work” 20 hours most weeks (visiting people in a health care center as a chaplain). This is very life-giving and takes the focus off of my aches and breathing issues.
    I w…[Read more]

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    • Profile picture of Mark Koziol
      Mark Koziol replied 3 years, 3 months ago

      Thank you Margaret.

    • Profile picture of Denny
      Denny replied 3 years, 3 months ago

      The Cleveland Clinic performed a lung transplant on a 77 year old patient last year.

  • Profile picture of Margaret

    Margaret posted a new activity comment 3 years, 3 months ago

    Thank you, Mark. I have been following this Forum for some time. Thank you Charlene for the service (I call it ministry) you are offering to those of us dealing with IPF. I cannot imagine your struggle being diagnosed with this awful illness at such a young age. My prayers and thoughts are with you.
    I was diagnosed with IPF in 2015 at age 74.…[Read more]

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    • Profile picture of Mark Koziol
      Mark Koziol replied 3 years, 3 months ago

      Thank you Margaret for reading and engaging in our discussions. How are you doing with this awful disease? I am sorry to hear you missed the cutoff and to hear about the passing of your sister. You are so correct about the strides with lung transplantation. I never take a day for granted. I believe in giving back as well, I feel it helps me with…[Read more]

      • Profile picture of Margaret
        Margaret replied 3 years, 3 months ago

        Hi Mark! Thanks for your response and questions. Actually, I’m o.k. with the cut-off at 70…even though I know everyone is different! I don’t feel like an “old 78” … still “work” 20 hours most weeks (visiting people in a health care center as a chaplain). This is very life-giving and takes the focus off of my aches and breathing issues.
        I w…[Read more]

        • Profile picture of Mark Koziol
          Mark Koziol replied 3 years, 3 months ago

          Thank you Margaret.

        • Profile picture of Denny
          Denny replied 3 years, 3 months ago

          The Cleveland Clinic performed a lung transplant on a 77 year old patient last year.

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    Margaret became a registered member 3 years, 3 months ago

    • Profile picture of Mark Koziol
      Mark Koziol replied 3 years, 3 months ago

      Welcome Margaret, thank you for joining the pulmonary fibrosis forum.

      • Profile picture of Margaret
        Margaret replied 3 years, 3 months ago

        Thank you, Mark. I have been following this Forum for some time. Thank you Charlene for the service (I call it ministry) you are offering to those of us dealing with IPF. I cannot imagine your struggle being diagnosed with this awful illness at such a young age. My prayers and thoughts are with you.
        I was diagnosed with IPF in 2015 at age 74.…[Read more]

        • Profile picture of Mark Koziol
          Mark Koziol replied 3 years, 3 months ago

          Thank you Margaret for reading and engaging in our discussions. How are you doing with this awful disease? I am sorry to hear you missed the cutoff and to hear about the passing of your sister. You are so correct about the strides with lung transplantation. I never take a day for granted. I believe in giving back as well, I feel it helps me with…[Read more]

          • Profile picture of Margaret
            Margaret replied 3 years, 3 months ago

            Hi Mark! Thanks for your response and questions. Actually, I’m o.k. with the cut-off at 70…even though I know everyone is different! I don’t feel like an “old 78” … still “work” 20 hours most weeks (visiting people in a health care center as a chaplain). This is very life-giving and takes the focus off of my aches and breathing issues.
            I w…[Read more]

            • Profile picture of Mark Koziol
              Mark Koziol replied 3 years, 3 months ago

              Thank you Margaret.

            • Profile picture of Denny
              Denny replied 3 years, 3 months ago

              The Cleveland Clinic performed a lung transplant on a 77 year old patient last year.

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