@magsween
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Margaret replied to the topic Phase 3 Trial Shows Ofev Reduces Lung Function Decline In Patients With Fibrotic Lung Diseases in the forum Flash Briefings & Podcasts 2 years ago
Happy New Year’s to all and thank you for all your sharing! I have to respond to this Ofev discussion … I share the responses of all the participants! I was diagnosed with IPF in Jan.2015 … was on Ofev for almost two years…the 150 mg messed with my liver enzymes but the 100 was o.k. that way. I felt like I was sacrificing quality of life -…[Read more]
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Margaret posted a new activity comment 2 years, 9 months ago
Hi Mark! Thanks for your response and questions. Actually, I’m o.k. with the cut-off at 70…even though I know everyone is different! I don’t feel like an “old 78” … still “work” 20 hours most weeks (visiting people in a health care center as a chaplain). This is very life-giving and takes the focus off of my aches and breathing issues.
I w…[Read more] -
Margaret posted a new activity comment 2 years, 9 months ago
Thank you, Mark. I have been following this Forum for some time. Thank you Charlene for the service (I call it ministry) you are offering to those of us dealing with IPF. I cannot imagine your struggle being diagnosed with this awful illness at such a young age. My prayers and thoughts are with you.
I was diagnosed with IPF in 2015 at age 74.…[Read more]-
Thank you Margaret for reading and engaging in our discussions. How are you doing with this awful disease? I am sorry to hear you missed the cutoff and to hear about the passing of your sister. You are so correct about the strides with lung transplantation. I never take a day for granted. I believe in giving back as well, I feel it helps me with…[Read more]
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Hi Mark! Thanks for your response and questions. Actually, I’m o.k. with the cut-off at 70…even though I know everyone is different! I don’t feel like an “old 78” … still “work” 20 hours most weeks (visiting people in a health care center as a chaplain). This is very life-giving and takes the focus off of my aches and breathing issues.
I w…[Read more]-
Thank you Margaret.
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The Cleveland Clinic performed a lung transplant on a 77 year old patient last year.
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Margaret became a registered member 2 years, 9 months ago
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Welcome Margaret, thank you for joining the pulmonary fibrosis forum.
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Thank you, Mark. I have been following this Forum for some time. Thank you Charlene for the service (I call it ministry) you are offering to those of us dealing with IPF. I cannot imagine your struggle being diagnosed with this awful illness at such a young age. My prayers and thoughts are with you.
I was diagnosed with IPF in 2015 at age 74.…[Read more]-
Thank you Margaret for reading and engaging in our discussions. How are you doing with this awful disease? I am sorry to hear you missed the cutoff and to hear about the passing of your sister. You are so correct about the strides with lung transplantation. I never take a day for granted. I believe in giving back as well, I feel it helps me with…[Read more]
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Hi Mark! Thanks for your response and questions. Actually, I’m o.k. with the cut-off at 70…even though I know everyone is different! I don’t feel like an “old 78” … still “work” 20 hours most weeks (visiting people in a health care center as a chaplain). This is very life-giving and takes the focus off of my aches and breathing issues.
I w…[Read more]-
Thank you Margaret.
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The Cleveland Clinic performed a lung transplant on a 77 year old patient last year.
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Thank you Margaret.
The Cleveland Clinic performed a lung transplant on a 77 year old patient last year.