@mary-ward
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Mary Ward replied to the topic Passing along what is working for me. in the forum Ofev (Nintedanib) 1 year, 9 months ago
Thank you all for sharing
it means a lot to me
as a nurse i am always interested in the whole picture
we need to continue to stay strong and support each other
again
thank you and take care
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Mary Ward posted an update 1 year, 11 months ago
Still hoping to hear from others re ofev
Presently taking a break per MD due to severe GI side efects and weak sore legs -
Mary Ward posted an update 1 year, 11 months ago
Hoping to hear from others about their experiences with ofev side effects
Not sure about trying it again -
Mary Ward posted an update 1 year, 11 months ago
Hi
Off ofev now 11 days due to severe gastric side effects, back pain & leg pains
Better every day
Talked to my pulmonologist yesterday
Plan to wait probably a week or so and try reduced dose of 100 mg twice a day
Anyone have a similar experience ???
Would love to hear about it
Take care
Thanks -
Mary Ward posted an update 1 year, 12 months ago
Hoping to hear from anyone re leg issues and Ofev
Thanks so much -
Mary Ward posted an update 2 years ago
Hi everyone!!
So enjoy this site !!
2 months now having discomfort and less strength
In my legs
On ofev for over a year
O2 2l nc at night
Asked 2pharmcists
Anyone having similar issues??
Thanks so much
Take care 😊🎈 -
Mary Ward replied to the topic Franklin Price ♥️ in the forum In Loving Memory 2 years ago
so very sorry for your loss
my heart is with you
lots of hugs 🤗 & love ❤️
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Mary Ward replied to the topic Life span in the forum Diagnosis Information and General Questions 2 years, 3 months ago
- What reassurance Char and Greg & Karen ! Thank you 😊
- It is a great uplifting thought to hold
- I work hard to keep a positive attitude
- because as a retired RN I have seen the power of positive thinking and taking the best possible care of ourselves
- stay safe everyone and take care
- Mary W
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Mary Ward posted a new activity comment 2 years, 4 months ago
Thanks Mark
Stay safe and strong
I am the champion of the power of positive thinking -
Mary Ward posted an update 2 years, 4 months ago
Hi everyone
Feeling better much less sob
Starting my 3 rd month of ofev
Increasing my physical activity because i can
Had blood work done 1 month after starting all is well
So enjoy this site So enjoy the sharing
Stay safe and take care-
Hey Mary, we enjoy you too. It sounds like you are tolerating the Ofev well. It’s great you increased your physical activity. This goes hand in hand with the increased activity. I hope you have a great breathing day! Mark
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Thanks Mark
Stay safe and strong
I am the champion of the power of positive thinking
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Mary Ward replied to the topic Exercise Routine in the forum Diagnosis Information and General Questions 2 years, 9 months ago
Where would i find exercise plan ?
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Mary Ward started the topic Restless legs in the forum Using Our Forums 3 years ago
Hi
I found Theraworx otc spray 100 percent effective in resolving leg cramps
Spray onto legs briskly rub in instant relief !!!
Able to go immediately back to sleep -
Mary Ward posted a new activity comment 3 years, 1 month ago
Thank you
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Mary, you are most welcome!
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Mary Ward posted an update 3 years, 1 month ago
Staying the course
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Mary Ward became a registered member 3 years, 4 months ago
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Hello Mary, welcome and thank you for joining your pulmonary fibrosis forum.
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Thank you
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Mary, you are most welcome!
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Mary Ward's profile was updated 3 years, 4 months ago
Hi Mary, try posting your question in the forum for OFEV, found here. There’s a text box at the bottom of the page to start a thread.