Michael Panagiotopoulos

Hello Malcolm,

sounds great you got rid of Ofev’s side-effects. I’m on Esbriet since June last year and my main complaints (after titrating and reaching full standard dose of 3 x 800mg daily in late July) were heavy stomach, slight nausea, tiredness and -worst of all- headaches. The MD recommended reducing dosage and I have finally settled for a…[Read more]

Hello all,

Regarding @wendy-dirks immunosupressant use, it might be prudent to follow the MDs recommenndations IMHO. I have been on Pirfenidone (Esbriet)  which is also an immunosupressant, for about a year after having fought with a few side effects (tiredness, headaches and upset stomach, being the most annoying) and managed to live with t…[Read more]

Hello Charlene,

I do agree with you this is an opporunity for ILD patients to profit from COVID19 “collateral benefits”, provided that one can keep evading the actual bug for as long as needed, but like you I am just an average layperson when it comes to technical jargon and delving into medical minutiae, so one can only hope that some benfit for…[Read more]

Hello group,

for quite some time now I have considered there may be possible “windfall benefits” for IPF patients, coming from the COVID19 storm. In other words I was hoping for a silver lining in this bleak atmosphere, stemming from the efforts of combined internationally focused research, looking for cures and therapies for coronavirus victims,…[Read more]

…thanks Charlene. After a quick search I found many Rhodiola supplements selling online, with different Rosavin milligram concentrations.

…very interesting development.

What would be the rhodiola rosea or rosavin dosage human equivalent, according to this experiment?

Hello Tom,

thanks for sharing your experience with us!.. I have read about NAC and will talk to my MD about including it in my regimen. May I ask you how you’ve managed these 2+ years with Esbriet’s multiple side effects?

Regarding vitamin D deficiency, it is a fact that most people who live in apartments in our modern cities and work 9 to 5 in…[Read more]

@steve-dragoo

Hello Steve,

thank you for sharing your homeopathy experience. Still, I haven’t quite understood whether you did initiate some allopathic treatment and then decided to terminate due to  side effects or haven’t done any at all.  I agree with your friend’s motto and would appreciate his newsletter very much, plus any link to info r…[Read more]

@charlene-marshall

Hello Charlene,

Thank You for your welcome and kind words. Indeed this forum is a treasure trove of useful info and guidance for PF people.

Regarding homeopathy remedies, I mentioned my particular recipe mix just for information since homeo treatments are based on each individual ‘s psycho-somatic profile and tailor made…[Read more]