Pulmonary Fibrosis News Forums | Celia | Activity https://pulmonaryfibrosisnews.com/forums/members/monica/activity/ Activity feed for Celia. Sat, 25 Apr 2026 12:56:38 -0500 https://buddypress.org/?v=2.20.0 en-US 30 hourly 2 69f907c7cee9106136db84b3f80d9da8 Celia replied to the discussion What portable oxygen concentrator do you recommend? in the forum Welcome Lounge https://pulmonaryfibrosisnews.com/forums/forums/topic/what-portable-oxygen-concentrator-do-you-recommend/#post-38771 Tue, 26 Aug 2025 12:34:13 -0500 Reply to What portable oxygen concentrator do you recommend?

Howdy! I am on O2 24/7 and I need 6 to 8 litres to walk .

However, when I am seated -which can be at home or in the car- I can use a concentrator .

It is true that the concentrator is not the same thing as an O2 tank, but personally I have found that using the concentrator for a car ride woks and is a great way to save on the tanks. I…

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]]> ab963a04536bb72dc3c0dd2a8d038824 Celia replied to the discussion OFEV Thoughts in the forum Treatments and Science https://pulmonaryfibrosisnews.com/forums/forums/topic/ofev-thoughts/#post-38751 Wed, 20 Aug 2025 17:27:32 -0500 Reply to OFEV Thoughts

GO for it, friends!

Hello!

I am on Ofev. at first I was ill a lot, (vomit, diarrhea and cramping) but I have focused on different dietary things and now I have very few symptoms. I definitely found that higher protein helps. For me breakfast is HB egg, on bread with cheese (I know, dairy, but it works for me) and sometimes add salmon. I often…

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]]> 4401626f49e6b3ed0ad72ad53f7d9ddf Celia replied to the discussion Anyone on Mycophenolate Mofetil (CellCept, Myfortic in the forum Treatments and Science https://pulmonaryfibrosisnews.com/forums/forums/topic/anyone-on-mycophenolate-mofetil-cellcept-myfortic/#post-37971 Tue, 18 Feb 2025 21:35:22 -0600 Reply to Anyone on Mycophenolate Mofetil (CellCept, Myfortic

hi!

I am on it. Worked up to 2000 per day (1K am and 1K pm).
I find that taking a fiber supplement helps my mild GI symptoms with it-obviously it has to be timed with the meds/ all the other stuff. This med is taken on en empty stomach. No problems really.

My dx is interstitial lung disease and RA.

I feel like it helps my RA, I have no idea…

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]]> 2e272c7bca60f0eb2ca2da00bcda7d03 Celia replied to the discussion Mental health and living with PF in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/mental-health-and-living-with-pf/#post-37953 Fri, 14 Feb 2025 22:20:15 -0600 Reply to Mental health and living with PF

ah hello.

I have been thinking this (the idea of how long to stay on treatment) – I have RA and PF diagnosed June 2023. no known risks or cause. Lung function has gotten much worse over last three months and I”m new to being on o2 (LTOT). To walk 20 feet I need 6 liters. Insurance is a NIGHTMARE. They have several times refused antfibrotic…

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]]> a8085ef2a5c8b66b12092107e00f1609 Celia became a registered member https://pulmonaryfibrosisnews.com/forums/activity/p/41437/ Wed, 31 Jan 2024 15:06:11 -0600 0