Not sure how many of you are aware of this but the billionaire Mark Cuban started a drug company called Cost Plus. For a lot of medications their prices are very good. I recently went to the website and clicked on their link for the pulmonary fibrosis drugs they carry. It listed Pirfenidone, which is the generic for Esbriet. The price for…

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What I will say probably won’t help you but here goes.

Ultimately, I think it is your decision what you want to do as it is your health and your life. I can only speak to what I would do.

I personally would need to know. I would push to schedule any an all tests as quickly as possible so that I knew what was going on with certainty. As far as…

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Another update. Cardiology report is fairly clear. So I can rule out CHF. Crackles are still there sadly. Doctors are pretty much ignoring me at this point. I am going to try to find a new pulmonologist at the start of the year. What pisses me off so much is that I have literal recordings of the sound and if they take the time and either let…

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Sorry to hear about your situation. I will let others who know more speak about medications and alternative treatments when it comes to IPF and other such issues. However, my grandfather on my mother’s side had severe RA. My mother has had RA for a long time as well as other autoimmune issues. After recently dealing with cancer, her pain…

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So an update to my situation. I have seen a second pulmonologist and he was about useless. He gave me a quick listen with a stethoscope and read the report of the radiologist. He then said that maybe it was fluid related and asked if I had a cardiology appointment. He also said that if the cardiologist didn’t find anything he had no idea what…

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Thanks for the kind words.

I did the 2 week monitor and it did see some drops. Average was 50’s with drops into the 30’s and some spikes as high as 140. I am severely out of shape so the spikes are when I did exertion or was nervous (as I often am). So those spikes brought up my average slightly.

As far as the CPAP, I have put it on with crackles as they are worse when I…

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Sorry to hear of your situation. I don’t blame you for wondering if there can be old scarring vs an ongoing condition. Nothing I have seen online even mentions that. It sounds like you have good doctors though and aren’t just being brushed off like I feel so many doctors do.

Might want to see if your CPAP is on the recall list. Apparently…

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Hello everyone,

First a bit of background. I am a late 40’s male who has been overweight his entire life. In my 30’s I developed sleep apnea and have been on a CPAP ever since. I also have had acid reflux for a long time (had ulcers in my teens). I didn’t do well with PPIs so have had to just deal with it. About 6 years ago I developed a…

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