I use an elevated bed but I also have a wedge for use when we travel. Even with the adjusted position comfortable sleep is hard to come by and in very short durations. Constantly toss and turning even with the use of oxygen.

Would love to hear from others that have had IPF for a few years what they are doing to get a GOOD nights sleep

Norm

Garry glad to have you in the forum. Good questions.
I’m 70, diagnosed 6 years ago. Have used both OFEV and Esbriet and had the usual side effects. OFEV for a year and the diarrhea was too much so switched to Esbriet but the dizziness and feeling uncomfortable was too much so I went off both. Totally my choice but didn’t want to live with the… Read more

I have been in both with side effects on each. OFEV was the diarrhea which restricted your social life and outside activities. Changed doses and not much better. Switched to Espriet and 9 pills a day couldn’t sit in the sun to watch grandson soccer or in our living room with the sun shining. Dizziness, nose & eyes running, feeling poorly… Read more

I have been in both with side effects on each. OFEV was the diarrhea which restricted your social life and outside activities. Changed doses and not much better. Switched to Espriet and 9 pills a day couldn’t sit in the sun to watch grandson soccer or in our living room with the sun shining. Dizziness, nose & eyes running, feeling poorly… Read more

Good morning Canadian here and I have had all the shots which include 2 boosters. Went to Whistler with all the family caught covid 2 days after returning in early August. Miserable for several days. Started with sore throat and then fatigue, then stuffy nose and a couple days later chest congestion. Breathing became difficult, sleep… Read more

Didn’t need to respond at the time as I hadn’t contacted Covid. Now I have and feel blessed that I had all 4 shots. Most definitely do not feel as good as before Covid. Less energy and shortness of breath now.
Norm

Charlene’s forum allows us to really describe how we feel without feeling guilty since everyone understands. So Virginia vent away, Randy get out to Washington, and Sharon thank you for striving through extreme health measures to dole out care to those who need it.
i read most of the submissions and wish you all well on the up hill battle caused… Read more

I have the same problem with second hand smoke of any kind cigarette, bbq, etc. Makes me come up short for breathing. Diagnosed in 2016 as well noticing a decline lately. Pulmonary test shows 16% less capacity from 6 months ago. Also on OFEV and diarrhea is difficult to live with.
Thanks for this blog Charlene.

Norm Beattie