@onre
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David Reno replied to the topic Transbronchial lung cryobiopsy? in the forum Diagnosis Information and General Questions 4 weeks, 1 day ago
I had a lung biopsy not sure what it was called. 3 small cuts a chest tube and 3 days in the hospital all to tell what we already knew. I was led to believe it would tell what type of PF I had, it did not.If given the choice to do it again I would not.Not alot of help sorry. I wish You well.
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David Reno posted an update 2 months ago
Hi all, Sleep has become an issue, mostly not getting enough air through My nose. Waking up because of dry mouth. Another issue when bending over I can’t breathe, just trying to tie a shoe is chore. I am not greatly over weight. Hoping All will have a Great Day.
DJR
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David Reno replied to the topic all us old folks with radiation induced pulmonary fibrosis???? in the forum Living with Pulmonary Fibrosis: 50+ 2 months, 1 week ago
Hi Richard, I guess You don’t know 100%. When the Surgeon that did My lung biopsy was looking at My CAT scan He said “sure looks like radiation scaring” after the surgery He very sure that rad. was the cause of My PF. Two other Drs. agreed. All We can is trust the Doc’s know what they are doing. Have a good day.
DJR
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David Reno posted an update 2 months, 2 weeks ago
I am going into My 2nd. Year, I am short of breath when active. I’m sure it is different for everyone, when did You start to use oxygen? Do You need it all the time? What equipment is the best to use? Thank You for Your feed back.
DJR
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When your pulmonoligists has you take the 6 minute walk and checks your oxygen level and it falls into the 80’s—-that’s when they will put you on oxygen. I’m surprised no one told you this.
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David Reno replied to the topic all us old folks with radiation induced pulmonary fibrosis???? in the forum Living with Pulmonary Fibrosis: 50+ 2 months, 2 weeks ago
I have been told My IPF is rad.& chemo. related. I am 69, I was 22 when treated for Hodgkin’s. When I asked how that was posable I didn’t get much of a answer, so not sure how true it may be. If it is true, I have no complaints, that treatment gave Me a lot of years.
DJR
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David Reno replied to the topic oily skin and in the forum Join the Discussion: Welcome to all PF/IPF Patients 2 months, 2 weeks ago
Hi Dennis , I also sweet a lot and have pimples on My chest and back. I guess it’s just another thing to deal with trying to stay alive. Have a good day.
DJR
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David Reno started the topic oily skin and in the forum Join the Discussion: Welcome to all PF/IPF Patients 2 months, 2 weeks ago
Does anyone have an increase of oil on the skin or hair from OFEV. I have been on it for 18 mo. I take 100mg 2x a day. I do have all the common side effects of OFEV . Any feed back will be helpful.
DJR
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David Reno posted a new activity comment 1 year, 3 months ago
Thank You, I look forward to learning from The Groups experience.
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David Reno became a registered member 1 year, 3 months ago
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Thanks for joining us David, welcome to the forums!
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Thank You, I look forward to learning from The Groups experience.
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