@pammaguire
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Pam Maguire replied to the topic Doctors making little sense despite severe symptoms in the forum Using Our Forums 3 weeks, 6 days ago
Hi Gavin,
I am also in UK, my husband has IPF.
I’m so sorry your not being looked after in your area, I know the feeling of shouting and no-one listening.
Can I clarify, your lumg function FVC was 20% or you have lost 20% ?? My husbands FVC is 66% and was sent for a full oxygen assessment- was determined he didn’t need it but ask for and…[Read more]
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Pam Maguire posted a new activity comment 1 month, 2 weeks ago
Hi Kim, hope you are well. Did you get your lung function test results? Any improvement? 3 hospitals are still trying to sort stuff for my husband and have managed to forget to do some blood test. So more waiting xx
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Pam Maguire posted a new activity comment 1 month, 3 weeks ago
Hi Jeff, we are UK also. My husband newly diagnosed at 53! We are under the care if Wythenshawe ILD unit.
How are you doing? -
Pam Maguire and
Jeff Taylor-Jackson are now friends 1 month, 3 weeks ago -
Pam Maguire replied to the topic Life span in the forum Diagnosis Information and General Questions 2 months ago
I also believe herbal remedies may help. I am keeping a keen eye on trails taking part in Australia at the moment safety testing on a new product designed to block Interlukin-11 and in mice it stopped and reversed scarring. This is my hope for my husband and PF community
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Pam Maguire and
Charlene Marshall are now friends 2 months ago -
Pam Maguire and
Kim Morrison are now friends 2 months ago
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Hi Kim, hope you are well. Did you get your lung function test results? Any improvement? 3 hospitals are still trying to sort stuff for my husband and have managed to forget to do some blood test. So more waiting xx
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Pam Maguire replied to the topic Life span in the forum Diagnosis Information and General Questions 2 months, 1 week ago
Hi Kim, I’m interested what your doctor said about the reduction in shadowing? Thought current medications available only slowed scarring not reduced? Or is it a different thing?
Pam
Xx
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Pam Maguire became a registered member 2 months, 1 week ago
Hi Jeff, we are UK also. My husband newly diagnosed at 53! We are under the care if Wythenshawe ILD unit.
How are you doing?