I am taking Ofev at its maximum dose now for over two years. I recieve assistance in paying the bill through an agency called ” THE PATIENT ADVOCATE CENTER ” I believe that if your doctor contacts them they can help out. Between my medicare supplement and this agency it becomes VERY AFFORDABLE. IT IS A GRANT PROGRAM SO IF YOU ARE TURNED DOWN… Read more

You must tell them. I told my children right away. I also told them to read up on it before jumping to any conclusion. I have had IPF for a little more than a year now. I started Esbriet 2 year ago and my oxygen tests inhaling and exhaling had only deteriorated 2% in 2 year. It is helping slow it down. Make sure you call them regularly, I… Read more

I had a-fib about 9 years ago. It took 2 oblation to eliminate it ,but had not had any repeat a – fib until just recently. It is spotty, but comes during overexursion or breathing attacks. Very far between. 2 days in last 2 weeks. It does worry me though

 

I too am having trouble sleepping and itching ovetnight. Everywhere.

I too have a pain in my middle section ,right side. Iy might be gall bladder .i didnt have it before i started Esbriet. Brain fog has definitely increased as well as short term memory. Not sure if Esbriet is the cause, but its getting worse
Unlike others though. Im gaining weight
Also having w e ird dreams

Itold my children as soon as I was diagnosed . The first thing i had them do was to look up what it is, how it can be treated and last and probably most important that many patients live for over 20 years with this and that i would be able to take Esbriet to slow down the progression of the disrase. I keep in touch at least once a week… Read more