I was on LOA from my job and then went onto LTD from the insurance company my employer uses.  As Sam mentioned I was also provided assistance from my employer’s company to get my SSDI established.  I paid a small fee to them from my accrued SSDI but I did not have to worry about the process and paperwork as I had already submitted most things… Read more

In 2014 I started having nonproductive cough – went to a pulmonologist recommended by my PCP.  After being diagnosed with GERD, asthma and allergies over the course of 4 years I finally got a referral to a pulmonologist at UCSF. I had had a few PFTs and a CT scan during the time with the original pulmonologist.

When I saw the pulmonologist… Read more

I just participated in a webinar presented by the Compassion and Choices organization.  They have an abundance of useful information that you may find useful:

Compassion & Choices | End-of-Life Resources

I started on Esbriet when I was first diagnosed 2 years ago.  I had horrible side effects – constant diarrhea and lost about 40 lbs – not good.  I stopped for a while then my pulmonologist suggested I try OFEV.  I have been on that for almost a year.  I started with 150mg/2x/daily and continued to have severe diarrhea and continued to lose… Read more