thanks for your replies

i am on tyvaso (DPI) for 1 year, covered by my insurance— they required a RHC to document my pulmonary hypertension (they would not accept the echo results— i suppose too inaccurate)— i am on the maxiumum DPI dose (64 mcg)— which is sightly lower than the maximum nebulizer dose (which the insruance won’t…

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I noted today new findings on tyvaso— the author (Marisa Wexler, 9/3/25) notes that the study found tyvaso improves PFT— but later notes that persons on tyvaso did better than those on placebo. So it’s ambiguous— does tyvaso imrpove pfts or just slow down the rate of decline. I am on tyvaso (because I also have pulmonary hypertension)…

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When you say you use 2 liters @ rest— do you mean 2 liters or an inogen set @ 2.? The Inogen numbers are not liters/mn—- the maxiumum on an inogen is 1L/mn— though it is only generating O2 during inspiration— approximately equivalent to 2 liters/mn continuously at its maximum setting. And it is true that your O2 needs increase at…

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has anyone heard anything about the value of omega-3 in the diet and slowing the progression of PF. and whether omega-3 supplements might be helpful. there was an article in Chest on this

https://journal.chestnet.org/article/S0012-3692(23)05645-3/fulltext

this one on amazon works pretty well

 

btw —- i use it with the pack on the front—- easier to control it

Hiatus hernia/GERD is very common—- whether or not you have IPF.  Some suggest GERD causes IPF, but there is no smoking gun.  Seems to me if GERD caused IPF, then IPF would be much more common. PPIs like Prilosec help symptoms, but long-term use is associated with rare, serious side-effects, so many docs have become reluctant to recommend it… Read more

It’s more complicated.

1) If you use 3 L/m continuous around the house, your oxygen needs are much lower than what you need during exercise to avoid hypoxia.  How much lower will vary from person to person.  How much hypoxia you can “tolerate” also varies from person to person. Apart from the discomfort of hypoxia, preventing prolonged hypoxia… Read more