Such excellent advice! Thank you so much

Thank you for your input! This makes so much sense to me. And explains why her machine stops pulsing sometimes when she naps in her chair:)

I didn’t know that your breath had to be strong enough to trigger the pulse, but that makes sense! I worry about having her machines on pulse – that’s something I’ll definitely start noticing.
and I’ll definitely look into the JY101s!

thanks!!

Yes, I know! I was very surprised to find out how much the portables are. And the battery cost hadn’t occurred to me.
Between IPF and dementia my mom doesn’t get out a lot. I can’t imagine having to travel a lot with a machine to deal with.
thanks for your advice!!

Sounds like great advice, Doug! I’ll look into Everflo. She’s at 3lpm now, but I feel like they are going to increase it at her visit this week.
Thanks for your wisdom! And I wish you the best:)

Thanks, Kris!
The type that has to be plugged in is exactly what I need. It’s portable enough to take with her if she spends a night or two away from home. The liquid oxygen tanks are super heavy so you really can’t move them at all.
She has a small rechargeable portable that she can pull behind her but it acts up sometimes so I don’t depend on… Read more

Hello, everyone!
My mom has IPF. She was diagnosed 3 1/2 years ago. She is on 3 liters of oxygen while active and at night. She had an exacerbation a couple of months ago and seems to need her oxygen more often. We are heading to a pulmonologist appointment this week – they may increase her intake again. We currently  rent a liquid oxygen… Read more

I wanted to thank everyone for your generous responses. Especially you, Charlene! You responses are always so thoughtful. This forum is such a wonderful resource!

We are going this week, as suggested by someone, to a local supplier. She is currently using 2l while sleeping and while active. She currently doesn’t need it when she’s at rest.… Read more

My mother just started taking it about two months ago. She was diagnosed a year ago, but we suspect she’s had it longer. Luckily her IPF is progressing very very slowly. Her doctor prescribed it to slow the progression even further. He suggested Ofev over esbriet simply because it was one less pill to remember to take – he said esbriet is 3 a… Read more

Thanks for all this info, Charlene! This is great. We are still new to all this, so this is very helpful.

My mom requires 2 liters, at least I think that the right term.

Can’t wait to hear opinions from anyone else! On brands they like, didn’t like, etc!

Good Morning!

This is my first ever post, so hello to all of you! My name is Patti.

My mother was diagnosed with IPF about a year ago. She has been on oxygen therapy for about 8 mos. She uses liquid oxygen  -a large tank I call “the mothership” sits in our home, and she has a small portable Helios unit she uses when out and about.

The… Read more