I too have lost weight, 40lbs to go with a severe cough that can’t seem to find anything to help! Prednisone boost helps for a while but Pulmonologist is reluctant to keep prescribing?? Anyone have anything that works for them?

Randy

Just came back from 5 days fishing in Canada with 2 of my sons and some family friends, ate lots of fresh walleye and had a great time with my boys! That is my happy place and I plan on doing that every year till my PF prevents me! So far I feel I am luckier than most, it’s been 3 years since I was diagnosed and can still do most everything I… Read more

Hi I was diagnosed with PF about 2 1/2 years ago and no known cause so I assume it is IPF. I was prescriped 1,000 mg of CellCept twice a day to slow the progression and so far it seems to be working. I have no side effects from it at all. I am tired all th e time and get short of breathe doing very little, but outside if that I am doing fine.

Randy

Hi Ben, I am new to this forum, I was diagnosed with PF about 2.5 yrs ago and I am also on CellCept. I got COVID on December 12 and was given the Moneclonal Antibody Infusion the next day. Had severe sypmtoms for about 2 weeks, body ache, chills, headaches, fever and lost smell which it is finally coming back slowly the last month. I am now… Read more