I live in the UK and have been on OFEV for a little over two years and I was also interested in considering zinc as a supplement.  My pulmonologist wouldn’t say whether this was a good idea or a bad idea so its probably a grey area at the moment – I’d be interested in reading any comments!

Hi Ray,

If you were diagnosed in 2008 you are now fifteen years into your IPF journey and that’s good going!  I was diagnosed in 2021 so I’m a mere novice compared to you but here is my attempt to answer your question.

I’m English and live in the UK where the rules are different. Here as long as you have lung capacity of lower than 80% and… Read more

Hi Theresa,

Nasal drip and excessive mucus are really big problems for many of us and I’m sure different things work for different people – here are my experiences.  (I live in the UK so perhaps medication names may be different in the US).

I was diagnosed in February 2021 after suffering with breathlessness, post nasal drip and mucus for… Read more

Hi John – sorry to hear about your diagnosis.  I’m a year ahead of you as I was diagnosed in Feb 2021.

I live in the UK and here OFEV is free so I don’t have your difficult affordability problems.  However in the UK this medication is supplied by our health service with ‘strings attached’.  I won’t bore you with the details but this prompted… Read more