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Kay Robertson

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@rizzinator

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    Kay Robertson replied to the topic Taking Cellcept (mycophenolate) PLUS Ofev in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year, 1 month ago

    Hi Sandy,

    I have Interstitial Lung Disease and Scleroderma and take Cellcept and Ofev.  My doctor prescribed 4mg Ondansetron ODT for when I get nauseous.  You dissolve a small pill on your tongue and it gets rid of the nausea quite fast.  Hope this helps.

    Kay

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    Kay Robertson replied to the topic OFEV purchase in the forum Ofev (Nintedanib) 1 year, 2 months ago

    Hi Paul,

    I have been on Cellcept and Ofev for last 4 months.  I am a 76 y/o widow and also denied Ofev assistance based on income.  I am on Aetna Medicare Advantage and as I am sure you know the prescription plans are reset yearly every January. My copay is 1st month $4,127,57, 2nd month $3,429.38 and then next 10 months $625.9 per month.  If yo…[Read more]

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    Kay Robertson replied to the topic abdominal cramps with Ofev in the forum Ofev (Nintedanib) 1 year, 5 months ago

    Hi Roseanne,

    Thanks for your advice.  Cellcept (Mycophenolate Mofetil) is used to treat autoimmune diseases and reduce inflammation.  I have also been diagnosed with Scleroderma which may or may not be the cause of my IPF.  Colace is what the Special Pharmacy pharmacist recommended for the constipation. But it really isn’t working.

    Hope you ma…[Read more]

  • Profile picture of Kay Robertson

    Kay Robertson replied to the topic abdominal cramps with Ofev in the forum Ofev (Nintedanib) 1 year, 5 months ago

    Hi Friends,

    I started Cellcept  3000mg in August and Ofev 150mg 2x daily in September.  I also take Omeprazole 40mg 2x a day for acid reflux. I have had no diarrhea must be odd man out because I have gas, bloating and constipation. I was constipated for 3 days and was told to take Colace.  Finally went on 4th day (with severe cramping) and was to…[Read more]

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    Kay Robertson started the topic Hillrom system and Scleroderma in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 1 year, 9 months ago

    I am new to this forum so please forgive any missteps.  I am 76 years old and been blessed with past excellent health. This past March, 2021, I developed a chronic dry cough so went to a Pulmonologist. CT scan showed Bronchiectasis, pulmonary fibrosis and honeycombing. I was prescribed two nebulizers, Brovana ad Lonhala, and vest therapy.  I had n…[Read more]

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    Kay Robertson became a registered member 1 year, 9 months ago

    • Profile picture of Charlene Marshall
      Charlene Marshall replied 1 year, 9 months ago

      Thanks for joining the PF forums Kay. Welcome!

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