Looks like I’m a day late and a dollar short to comment but I will anyway.

Like everyone else, I agree.  This CV is attacking lungs and causing scarring.  With all the research surrounding this, we just might get some useful treatment from it.  Or, at a minimum, we might get more attention to the IPF problem by the researchers.

For me, I have… Read more

Hi,

I’ve not taken that medicine but I have been taking Chinese herbal medicine for the past year.  Several months I used the IPF from Wei Laboratories (~$1000 per 28 day supply) and on several other different months I used a ‘soup’ (about $250 per month) prescribed by a Traditional Chinese doctor in Seattle.  My wife brews the soup for me… Read more

What I have is 100% fatal and 0% contagious.  Thank you for your concern.  Next!

If they continue to be obnoxious, “I really wish I could give it to you”.

 

Sorry, like Mark, I’m not very politically correct either.  🙂

 

Just another data point:

I was diagnosed with IPF 2 1/2 years ago.  Nobody in my family or extended family that I know of has this.  I’m special. {place facetious smiley here}.

Me?  I did many things wrong.  I am 66 and I did smoke off and on from the age of 13 until about 60.  I smoked continuous from 13 until about 22, quit for many years… Read more

My American doctor told me this time last year that he wanted me on oxygen 24/7/365.  My Chinese friend (who is a doctor in China) simply said, “don’t use”.  The Chinese medical community think supplementing oxygen causes the lung cells to age faster which basically leads to earlier death.  My American doctor was visibly upset when I told him I… Read more

About ten years ago my mother asked me what I wanted for Christmas.  I told her, I want to never have to do this again.

I left the nest when I was 17 to join the Air Force, except for college, I’ve always lived far away from family.  Every year, I was the one who traveled home for Christmas.  I had to either ship everything, pack everything,… Read more

Funny you should ask.  When I was little we would go to the beach often.  I noticed that after swimming in the ocean my wounds would heal faster (I mean, MUCH faster).  When I was told there was no cure for this fibrosis I wondered if inhaling salty mist might help heal the lungs like the salt water did all my scrapes and cuts.  I was afraid… Read more

I’m doing a google search and I can’t find anything related to lasers and IPF.  Do you have any links/info?

What are they doing with the laser?  I’m assuming cutting off scar tissue.  What keeps it from growing back or do they just keep cutting off more scar tissue periodically?

Changed my mind about posting but can’t see a way of cancelling.

And a hearty thank you to you Denny for telling us about Wei Laboratories.  I received my Wei Laboratories shipment today.  I’ll take my second dose in about an hour.

This is way cheaper than pirfenidone and I won’t get sick taking it.

I just received my Wei Laboratories package today.  For $956 I got enough for exactly 28 days (a February month – I’ll see if I get 31 days worth next month).  They only sell the pills (capsules) now so you folks don’t have to worry about the horrible tasting liquid.

My next checkup is in March.  I’ll post my results then.  I’ll also post how I… Read more

Hi Denny,

I saw your posts about Wei Institute and I’m trying to get hold of them.  I sent them a message through their web site and they sent me some info and a short intro letter stating that someone would contact me ‘shortly’.  It’s been 2 days and nobody has contacted me.  I tried to call but I just get an answering machine.

I’m not sure… Read more