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Richard J Shank replied to the topic New treatments in the forum Clinical Trials 2 years, 8 months ago
Looks like I’m a day late and a dollar short to comment but I will anyway.
Like everyone else, I agree. This CV is attacking lungs and causing scarring. With all the research surrounding this, we just might get some useful treatment from it. Or, at a minimum, we might get more attention to the IPF problem by the researchers.
For me, I have ha…[Read more]
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Richard J Shank replied to the topic Eastern Medicine alternative in the forum Diagnosis Information and General Questions 2 years, 10 months ago
Hi,
I’ve not taken that medicine but I have been taking Chinese herbal medicine for the past year. Several months I used the IPF from Wei Laboratories (~$1000 per 28 day supply) and on several other different months I used a ‘soup’ (about $250 per month) prescribed by a Traditional Chinese doctor in Seattle. My wife brews the soup for me b…[Read more]
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janis gorsline and
Richard J Shank are now friends 2 years, 10 months ago
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Richard J Shank replied to the topic So upset in the forum Living with Pulmonary Fibrosis: 50+ 2 years, 10 months ago
What I have is 100% fatal and 0% contagious. Thank you for your concern. Next!
If they continue to be obnoxious, “I really wish I could give it to you”.
Sorry, like Mark, I’m not very politically correct either. 🙂
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Richard J Shank replied to the topic I Did Everything Right, So Why Did I End Up With Pulmonary Fibrosis? in the forum Flash Briefings & Podcasts 2 years, 11 months ago
Just another data point:
I was diagnosed with IPF 2 1/2 years ago. Nobody in my family or extended family that I know of has this. I’m special. {place facetious smiley here}.
Me? I did many things wrong. I am 66 and I did smoke off and on from the age of 13 until about 60. I smoked continuous from 13 until about 22, quit for many years but…[Read more]
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Richard J Shank replied to the topic Prognosis Predictions for IPF Patients in the forum Diagnosis Information and General Questions 2 years, 11 months ago
My American doctor told me this time last year that he wanted me on oxygen 24/7/365. My Chinese friend (who is a doctor in China) simply said, “don’t use”. The Chinese medical community think supplementing oxygen causes the lung cells to age faster which basically leads to earlier death. My American doctor was visibly upset when I told him I wo…[Read more]
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Richard J Shank replied to the topic Is it time to give up Christmas? in the forum Living with Pulmonary Fibrosis: 50+ 3 years ago
About ten years ago my mother asked me what I wanted for Christmas. I told her, I want to never have to do this again.
I left the nest when I was 17 to join the Air Force, except for college, I’ve always lived far away from family. Every year, I was the one who traveled home for Christmas. I had to either ship everything, pack everything, or…[Read more]
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Richard J Shank posted a new activity comment 3 years, 4 months ago
Hi John,
I’m probably not the person to talk to about Wei. I took it for 3 months with good results but then moved on to a Chinese doctor taking his prescribed herbs. I know I feel much better than before I started taking Wei but my resting oxygen shows I’ve gone from 96% down to 94% in the last 9 months. I’m contemplating going back to Wei to…[Read more]
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Richard J Shank replied to the topic Have you tried a Salt Room? in the forum Diagnosis Information and General Questions 3 years, 4 months ago
Funny you should ask. When I was little we would go to the beach often. I noticed that after swimming in the ocean my wounds would heal faster (I mean, MUCH faster). When I was told there was no cure for this fibrosis I wondered if inhaling salty mist might help heal the lungs like the salt water did all my scrapes and cuts. I was afraid to…[Read more]
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Richard J Shank replied to the topic Diet additions that might help AND WEI Institute cure claim – really? in the forum Join the Discussion: Welcome to all PF/IPF Patients 3 years, 11 months ago
I’m doing a google search and I can’t find anything related to lasers and IPF. Do you have any links/info?
What are they doing with the laser? I’m assuming cutting off scar tissue. What keeps it from growing back or do they just keep cutting off more scar tissue periodically?
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Richard J Shank replied to the topic Diet additions that might help AND WEI Institute cure claim – really? in the forum Join the Discussion: Welcome to all PF/IPF Patients 3 years, 11 months ago
Changed my mind about posting but can’t see a way of cancelling.
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Richard J Shank replied to the topic Diet additions that might help AND WEI Institute cure claim – really? in the forum Join the Discussion: Welcome to all PF/IPF Patients 3 years, 12 months ago
And a hearty thank you to you Denny for telling us about Wei Laboratories. I received my Wei Laboratories shipment today. I’ll take my second dose in about an hour.
This is way cheaper than pirfenidone and I won’t get sick taking it.
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Richard J Shank replied to the topic Diet additions that might help AND WEI Institute cure claim – really? in the forum Join the Discussion: Welcome to all PF/IPF Patients 3 years, 12 months ago
I just received my Wei Laboratories package today. For $956 I got enough for exactly 28 days (a February month – I’ll see if I get 31 days worth next month). They only sell the pills (capsules) now so you folks don’t have to worry about the horrible tasting liquid.
My next checkup is in March. I’ll post my results then. I’ll also post how I f…[Read more]
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Richard J Shank posted a new activity comment 3 years, 12 months ago
Hi Charlene,
I’m not complaining. I’m just stating facts so people will know what to expect. I’ve sent a post to Denny to ask him if this is normal (maybe it takes them 4 days to call back – could be busy) or if they will just recommend I contact one of their representatives near me.Thank you for this site. I wouldn’t have gotten this far…[Read more]
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Oh no problem @rjshank, I didn’t think you were complaining, not too worry. I am sure Denny will connect with you as soon as he can. He’s been very helpful when it comes to sharing information about the Wei products. Really glad you’re here, and I look forward to getting to know you a bit more.
Cheers,
Charlene.
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Richard J Shank replied to the topic Diet additions that might help AND WEI Institute cure claim – really? in the forum Join the Discussion: Welcome to all PF/IPF Patients 3 years, 12 months ago
Hi Denny,
I saw your posts about Wei Institute and I’m trying to get hold of them. I sent them a message through their web site and they sent me some info and a short intro letter stating that someone would contact me ‘shortly’. It’s been 2 days and nobody has contacted me. I tried to call but I just get an answering machine.
I’m not sure if…[Read more]
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Richard J Shank posted a new activity comment 3 years, 12 months ago
Thanks. Just got diagnosed with IPF. I’m trying to contact Wei Institute/Laboratories but nobody answers the phone. I guess I’ll have to go back to the thread where I heard about them and ask the original poster (who seems to have knowledge of the place).
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Hi @rjshank, sorry to hear that was your experience with the Wei Institute! Apparently there is someone named Gabby who is really helpful if you can get through and ask directly for her. I’ve never called them but @denny-eliassen is a great resource to connect with about his experience with Wei products 🙂
Take care,
Charlene.-
Hi Charlene,
I’m not complaining. I’m just stating facts so people will know what to expect. I’ve sent a post to Denny to ask him if this is normal (maybe it takes them 4 days to call back – could be busy) or if they will just recommend I contact one of their representatives near me.Thank you for this site. I wouldn’t have gotten this far…[Read more]
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Oh no problem @rjshank, I didn’t think you were complaining, not too worry. I am sure Denny will connect with you as soon as he can. He’s been very helpful when it comes to sharing information about the Wei products. Really glad you’re here, and I look forward to getting to know you a bit more.
Cheers,
Charlene.
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Richard J Shank became a registered member 4 years ago
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Welcome to the PF forums Richard. Thanks for joining us!
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Thanks. Just got diagnosed with IPF. I’m trying to contact Wei Institute/Laboratories but nobody answers the phone. I guess I’ll have to go back to the thread where I heard about them and ask the original poster (who seems to have knowledge of the place).
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Hi @rjshank, sorry to hear that was your experience with the Wei Institute! Apparently there is someone named Gabby who is really helpful if you can get through and ask directly for her. I’ve never called them but @denny-eliassen is a great resource to connect with about his experience with Wei products 🙂
Take care,
Charlene.-
Hi Charlene,
I’m not complaining. I’m just stating facts so people will know what to expect. I’ve sent a post to Denny to ask him if this is normal (maybe it takes them 4 days to call back – could be busy) or if they will just recommend I contact one of their representatives near me.Thank you for this site. I wouldn’t have gotten this far…[Read more]
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Oh no problem @rjshank, I didn’t think you were complaining, not too worry. I am sure Denny will connect with you as soon as he can. He’s been very helpful when it comes to sharing information about the Wei products. Really glad you’re here, and I look forward to getting to know you a bit more.
Cheers,
Charlene.
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