Pulmonary Fibrosis News Forums | Rob Tyler | Activity https://pulmonaryfibrosisnews.com/forums/members/rob-tyler/activity/ Activity feed for Rob Tyler. Thu, 23 Apr 2026 13:45:40 -0500 https://buddypress.org/?v=2.20.0 en-US 30 hourly 2 9fba80e395236170b2a9b003255bfd6e Rob Tyler replied to the discussion how long can you take Esbriet? in the forum Esbriet (Pirfenidone) https://pulmonaryfibrosisnews.com/forums/forums/topic/how-long-can-you-take-esbriet/#post-20592 Thu, 01 Aug 2019 18:57:22 -0500 Reply to how long can you take Esbriet?

I never thought there was a time line, or a time where You need to stop taking Esbriet.  I have been taking Esbriet for over three years.  I had the side effects 6 months after my full daily dose, and battled them for 3 months: (reducing dose, and building back up to max once again, working threw insomnia and mood swings)  The drug is… Read more

]]> fced2cd11f6a3751f6bf2ec1d0529c9e Rob Tyler replied to the discussion Recently diagnosed with IPF & Honeycomb Lung in the forum Welcome Lounge https://pulmonaryfibrosisnews.com/forums/forums/topic/recently-diagnosed-with-ipf-honeycomb-lung/#post-18608 Fri, 19 Apr 2019 17:55:00 -0500 Reply to Recently diagnosed with IPF & Honeycomb Lung

Hello John;  welcome to the site.  I am two weeks shy from being on Esbriet for one Year.  I understand Your concerns regarding side effects, and I had the same views.  I did the 2 week, 3 pills a day, to 2 weeks, 6 pills a day, then the full load of 3 pills, 3 times a day.  It went smooth for a couple of months …. but then I hit a wall.  I had… Read more

]]> 338ea6aa1b0cdfa07b29c8e68ee4c8c0 Rob Tyler became a registered member https://pulmonaryfibrosisnews.com/forums/activity/p/11008/ Sun, 07 Apr 2019 13:11:08 -0500 1 ce63518b89dfd2daf2af1f563c1def11 Rob Tyler updated their profile https://pulmonaryfibrosisnews.com/forums/activity/p/10999/ Sun, 07 Apr 2019 00:53:50 -0500 0