Hello All,

I am holding out taking Esbriet because of side effects and the fact that I’m already taking close to 14 medicines/supplements per day. I have been polite and told the three different doctors that have encouraged me to try it. I am 66 years old and having seen my Mom suffer from permanent side effects from cancer treatment I am wary… Read more

I read the postings about possible relationship between statins and ipf. I have been taking them since the 1980s, first pravachol and then 10 mg lipitor. I wasn’t diagnosed with ipf until April 2016. I am still taking lipitor. I don’t notice much of a side effect beyond muscle cramps which are alleviated with Co-Q-10 200 mg. I will be… Read more

Hello Charlene, I was diagnosed in April 2016. At the time i was working at a branch library as a part time non benefited aide. I was fortunate to have worked for 30 years in the same system and to have retired in 2003 at age 50 when my son was born. I went back to work in 2006 in the my current job.

My workplace, supervisors and coworkers… Read more

Hi Charlene,

I have read the above posts regarding muscle cramps and pain. I have notice over the time since i was diagnosed two years ago that i sometimes develop severe cramps in muscles in my chest over my right and left lungs. Also i develop agonizing ones in the muscle area in my inner thighs. It is difficult to wait for them to pass… Read more

I am thankful that you all are here in this support group. I am supposed to begin taking Esbriet soon. I hope that i will be able to tolerate it. Thank you all for the comments. I will take everything you have said into consideration when i begin this medicine. My pulmonologist has gone over the side effects and wants to start me on a therapy.