Hi Charlene,

I didn’t have an echocardiogram done till a year after the IPF was found on my chest x-ray (May 2013).  And I’m not sure how long I had the IPF  before that chest x-ray.  My echo done in the spring of 2014 showed I had a mean arterial pressure of 28-30.  But my pulmonary doctor was not concerned, he felt we could keep an eye on… Read more

Hi All,

I’ve only had one 6 minute walk test.  That was given to me in January 2015 at UCLA.  (I am returning to their ILD clinic in May)  My test was done for 6 minutes, and I just kept walking till the end.  I was able to maintain a sat in the low to mid 90’s during the test.  I recovered quickly from any shortness of breath.  I did 440… Read more

My previous primary doc never tested my Vit D level.  Neither did my pulmonologist.  I have a new primary as my previous one retired.  He tested my Vit D level last August, and it was low.  He waited a couple of months and retested it, and it was still low.  Put me on Vit D 5000 units each week.   I see him in a couple of weeks for repeat… Read more

I am retired.  I stopped working in Oct. 2014, at the age of 63.  I was a full time critical care nurse in a Cath Lab.  My last year of work was part time, as I could no longer keep up working full time, nor could I keep up with the ‘on call’ schedule.  I was always exhausted.  I had an hour commute each way to work.  It was a difficult… Read more