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Steve Blake replied to the topic Severe neck and shoulder pain in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year, 9 months ago
My progression has been very slow. I did not take any medication until 2018 and also was prescribed oxygen at 2L for sleeping at night. I only use oxygen in the daytime if active, exercising or out and about. Also started Ofev at the same time. I also have Asthma and Polymyalgia Rheumatica. Prednisone for the Poly, Symbicort, Singulair and…[Read more]
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Steve Blake replied to the topic Severe neck and shoulder pain in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year, 9 months ago
I am 75 years old and was diagnosed with IPF in 2012. Earlier this year I had shoulder and neck pain and my Pulmonologist referred me to Rheumatologist. I was diagnosed with an autoimmune disease known as Polymyalgia Rheumatica which is treated with prednisone. Once treatment was started I had immediate relief.
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Steve Blake replied to the topic Life span in the forum Diagnosis Information and General Questions 2 years, 1 month ago
I have IPF. I was diagnosed in 2012 and began taking Ofev in 2018. I went on oxygen for sleeping in 2018 and use it if active and exercising. I too received the 3-5 year and it was scary. What you have to understand is that everyone is different and there is no way to predict. I know totally ignore the 3-5 year guestimate and feel great and…[Read more]
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Steve Blake started the topic Coronavirus Being Breathed In Through POC in the forum Coronavirus (COVID-19) and Pulmonary Fibrosis 2 years, 10 months ago
Has anyone given any thought that the virus could be breathed in through your portable oxygen concentrator? I am starting to think about this as restrictions are being relaxed. I use an Inogen and it has a couple of mesh filters and per the manual there is another one where you plug the cannula in that is not user accessible without a special w…[Read more]
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Steve Blake became a registered member 2 years, 10 months ago
Hello Steve, thank you for joining your pulmonary fibrosis forum. Welcome!