Pulmonary Fibrosis News Forums | Sylvain | Activity https://pulmonaryfibrosisnews.com/forums/members/schsyl/activity/ Activity feed for Sylvain. Tue, 21 Apr 2026 11:16:59 -0500 https://buddypress.org/?v=2.20.0 en-US 30 hourly 2 9a0ae261838a947f9eba5fa85584154c Sylvain posted an update: Gavin, You need a cpap only if you have sleep apnea! […] https://pulmonaryfibrosisnews.com/forums/activity/p/38783/ Thu, 18 May 2023 22:18:45 -0500 Gavin,
You need a cpap only if you have sleep apnea! Your Oxygen saturation drops while you sleep if your heart doesn’t pump enough blood and your lungs don’t get enough Oxygen. It could be either heart or lung related but regardless the cause the hypoxic condition is harmful to all your organs such as brain, muscles, etc. You may feel… Read more

]]> 0 56664d80adf1bf66677749a815783dcc Sylvain replied to the discussion How to relax with severe breathlessness? in the forum Welcome Lounge https://pulmonaryfibrosisnews.com/forums/forums/topic/how-to-relax-with-severe-breathlessness/#post-35074 Thu, 18 May 2023 20:49:47 -0500 Reply to How to relax with severe breathlessness?

Gavin,

I’m 76 years old and I was diagnosed with IPF since 2018. I’ve been addicted to outdoor activities all myI life too many to list. My condition was fairly stable until last November when I experienced an exacerbation event (two weeks after my last Covid booster!!!!) that landed me in the ER. Within two months I was again in the ER.! … Read more

]]> a65438ba689b5de4a3a22547450a617e Sylvain posted an update: After a pretty stable condition since being diagnosed […] https://pulmonaryfibrosisnews.com/forums/activity/p/38235/ Fri, 07 Apr 2023 06:48:27 -0500 After a pretty stable condition since being diagnosed with IPF in 2018 I had two exacerbation events since the end of November, and each time I ended up in the ER for a few days!! Since then, my very active activities came to an abrupt stop! A true nightmare for someone addicted to sports for a lifetime! I’m 76 years old and since November I… Read more

]]> 0 6ba4369047670c63b11e3dcf2dfbad6f Sylvain replied to the discussion Phlegm in the forum Welcome Lounge https://pulmonaryfibrosisnews.com/forums/forums/topic/phlegm/#post-27125 Tue, 02 Feb 2021 20:16:41 -0600 Reply to Phlegm

I’ve been taking Serrapeptase for more than a year. It’s hard to tell if it helps or not, but mucus is really a daily annoyance.

]]> d84b80c574f1f4f5e86029fdf8b44a65 Sylvain posted an update: Thanks, Mark. https://pulmonaryfibrosisnews.com/forums/activity/p/24740/ Tue, 05 Jan 2021 21:44:58 -0600 Thanks, Mark.

]]> 0 abe0faf9689b96d083193f32282da586 Sylvain posted an update: I just signed up on the NJ COVID vaccine enrollment […] https://pulmonaryfibrosisnews.com/forums/activity/p/24734/ Tue, 05 Jan 2021 20:49:38 -0600 I just signed up on the NJ COVID vaccine enrollment list. One of the questioner’s questions was if I take any medication affecting my immune system. Since both Esbriet and Ofev work be suppressing the immune system, are those taking one of these medications at risk by taking the COVID Pfizer or Moderna vaccines?

]]> 1 c68f19348d26dcdceae8e84b5b4cb7b8 Sylvain replied to the discussion Combating Anxiety Amidst COVID-19 in the forum Welcome Lounge https://pulmonaryfibrosisnews.com/forums/forums/topic/combating-anxiety-amidst-covid-19/#post-23475 Tue, 17 Mar 2020 14:16:31 -0500 Reply to Combating Anxiety Amidst COVID-19

Trying to ignore the news is my coping strategy, aside from working out, taking daily walks with my wife, playing piano, drawing, reading etc. It doesn’t make my anxieties disappear since the IPF sword is always above my head, but it helps sometimes forget about it.I’m 73 years old and I retired last year, still trying to find my stride. Good… Read more

]]> f00f6e586d415c2a0d6e4e9c593a4d4b Sylvain replied to the discussion Back Muscle Shrinkage Tied to Poor IPF Outcomes, Study Finds in the forum Flash Briefings & Podcasts https://pulmonaryfibrosisnews.com/forums/forums/topic/back-muscle-shrinkage-tied-to-poor-ipf-outcomes-study-finds/#post-23378 Tue, 10 Mar 2020 19:42:46 -0500 Reply to Back Muscle Shrinkage Tied to Poor IPF Outcomes, Study Finds

Never heard of back muscle shrinkage due to IPF. Daily workouts may offset the shrinkage rate. I workout daily and I don’t seem to be bothered by this concern.

]]> a786284bdd1e585e37b7e97d3b0efaaf Sylvain posted an update: Was the outrageous cost of Esbriet (I'm not familiar […] https://pulmonaryfibrosisnews.com/forums/activity/p/18199/ Thu, 20 Feb 2020 17:40:26 -0600 Was the outrageous cost of Esbriet (I’m not familiar with Ofev’s cost) (i.e. approximately $10000 per month!) considered in these studies?….Considering the efficacy uncertainty associated with these medications as well as the certainty of shorter life expectancy (2-5 yrs) of IPF patients, these medications should be free through various… Read more

]]> 1 b986a3faed5a1c88db0a930c599f2279 Sylvain replied to the discussion Sinus Trouble As a Patient with Pulmonary Fibrosis. in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/sinus-trouble-as-a-patient-with-pulmonary-fibrosis/#post-16619 Sat, 09 Feb 2019 21:53:02 -0600 Reply to Sinus Trouble As a Patient with Pulmonary Fibrosis.

Unfortunately, regular doctors are not familiar with supplements and their interactions with other medications. Additionally, nobody checks the supplements’ sources and everything relared to their manufacturing chain and potential polutants associated with it! Tough choices!…

]]> 075b52ef3107f0b172bbeb7ee0342d85 Sylvain replied to the discussion Sinus Trouble As a Patient with Pulmonary Fibrosis. in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/sinus-trouble-as-a-patient-with-pulmonary-fibrosis/#post-16607 Sat, 09 Feb 2019 15:45:18 -0600 Reply to Sinus Trouble As a Patient with Pulmonary Fibrosis.

One of the concerns I have with the supplements mentioned is the risk of too much of a blood thinner, which can make one prone to hemorrhagic strokes even it protects you from heart attacks or ischemic strokes! It’s tricky to pick up your poison!

]]> e96beda0a296ecdf55f7d23a0188b3ac Sylvain replied to the discussion Sinus Trouble As a Patient with Pulmonary Fibrosis. in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/sinus-trouble-as-a-patient-with-pulmonary-fibrosis/#post-16575 Fri, 08 Feb 2019 19:55:54 -0600 Reply to Sinus Trouble As a Patient with Pulmonary Fibrosis.

Thanks, Steve. I’ll add astragalus to my daily serrapeptase. I take iSerra delayed realease 250,000 SPU 3 capsules daily.  Any suggestions for astragalus dose or manufacturer? As far as working out, I still work out daily by doing 2-3 miles hikes or treadmill if weather is really bad, lift weights and play some indoor tennis. I monitor my  O2… Read more

]]> 3262463e8a163a899c9c1c4f97ce0b4f Sylvain replied to the discussion Sinus Trouble As a Patient with Pulmonary Fibrosis. in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/sinus-trouble-as-a-patient-with-pulmonary-fibrosis/#post-16566 Fri, 08 Feb 2019 16:15:17 -0600 Reply to Sinus Trouble As a Patient with Pulmonary Fibrosis.

Serrapeptase seems to help my sinus drain but constant mucus in my throat remains a daily annoyance.  What supplements you take to get some relief from it. Sylvain

]]> c726d4aa4b1e843fa3126016abe9a3a7 Sylvain became a registered member https://pulmonaryfibrosisnews.com/forums/activity/p/7327/ Tue, 18 Dec 2018 18:07:32 -0600 1