Pulmonary Fibrosis News Forums | Sis | Activity https://pulmonaryfibrosisnews.com/forums/members/sis/activity/ Activity feed for Sis. Fri, 10 Apr 2026 13:32:18 -0500 https://buddypress.org/?v=2.20.0 en-US 30 hourly 2 a61886b96aca991d1f97fe14661d9311 Sis replied to the discussion How do you handle comments that discount the seriousness of your PF? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/how-do-you-handle-comments-that-discount-the-seriousness-of-your-pf/#post-38466 Wed, 04 Jun 2025 06:34:14 -0500 Reply to How do you handle comments that discount the seriousness of your PF?

Thank you Sam

]]> c1f22e3a108a490b0552a388969306a1 Sis replied to the discussion How do you handle comments that discount the seriousness of your PF? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/how-do-you-handle-comments-that-discount-the-seriousness-of-your-pf/#post-38464 Wed, 04 Jun 2025 04:51:21 -0500 Reply to How do you handle comments that discount the seriousness of your PF?

Thank you Charlene. I m back in hospital and feeling some better since put me back on Prednisone as I was on before. I was not taking any at all and wondering if this is why I was having Panic Attacks. I know you have taper off Prednisone not stop abruptly. What do you think about this. My oxygen was supposed to be on level 5 and they had set…

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]]> ecf45e15439758aec99adc0f3a78828b Sis replied to the discussion How do you handle comments that discount the seriousness of your PF? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/how-do-you-handle-comments-that-discount-the-seriousness-of-your-pf/#post-38408 Thu, 29 May 2025 06:55:00 -0500 Reply to How do you handle comments that discount the seriousness of your PF?

I was diagnosed with Pulmonary Fibrosis in August 2023. I have handled my diagnosis well up until this point. I took 100 mg OFEV for 18 months without issue but started having issues with very bad cramps and nausea so I stopped. Now that I have stopped my breathing is worse. Have had brief visits to Emergency Room recently. Last visit…

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]]> 3b8d2f39799614b5022c0848d87f82dd Sis replied to the discussion Wondering why treadmill/ exercise stress oximeter tests not done routinely? in the forum Welcome Lounge https://pulmonaryfibrosisnews.com/forums/forums/topic/wondering-why-treadmill-exercise-stress-oximeter-tests-not-done-routinely/#post-37613 Fri, 08 Nov 2024 07:16:16 -0600 Reply to Wondering why treadmill/ exercise stress oximeter tests not done routinely?

Thanks to all of you for sharing your experiences. It helps me to read your information. I have been diagnosed with PF since August 2023 but do not know what type I have. My 02 levels have been steady until past 4 weeks. I was on 3 of my oxygen but have had to increase to 4 continuous flow. If I go without oxygen for just few minutes…

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]]> 5af38a18710a64af6e05c3e734f3848b Sis replied to the discussion Is it IPF or Hiatal Hernia? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/is-it-ipf-or-hiatal-hernia/#post-37192 Wed, 19 Jun 2024 07:37:11 -0500 Reply to Is it IPF or Hiatal Hernia?

Thank you Papa for the good information. I will definitely try the Reflux Gormet you mentioned. Good luck to you.

]]> f5ea231d0fb7b153b1044835a21a73e0 Sis replied to the discussion Is it IPF or Hiatal Hernia? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/is-it-ipf-or-hiatal-hernia/#post-37183 Sat, 15 Jun 2024 08:54:15 -0500 Reply to Is it IPF or Hiatal Hernia?

Hello jap. Thanks for t reply. I have never heard of Silent Aspiration and HH. I need to go to that clinic in Phoenix you went to have my HH checked It is pretty close to where I live as I live in Las Vegas, NV Also I have never heard of Barotts Esophagus I’ll research it to learn more

Pray you will live many more years than you were told

]]> efe32633da76d56aeed561bb90c884b3 Sis replied to the discussion Is it IPF or Hiatal Hernia? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/is-it-ipf-or-hiatal-hernia/#post-37182 Sat, 15 Jun 2024 08:31:31 -0500 Reply to Is it IPF or Hiatal Hernia?

Thank you for reply Denise. For my HH I have been on Pantoprazole for many years. It used to work well but since my PF diagnosis it has rapidly gotten worse. I have had biopsies last year 2023 but doctors only told me I have PF. I’ll keep searching. Prayers for you.

]]> 45fbb34ace445e98f0440300536092ee Sis replied to the discussion Is it IPF or Hiatal Hernia? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/is-it-ipf-or-hiatal-hernia/#post-37170 Thu, 13 Jun 2024 07:34:24 -0500 Reply to Is it IPF or Hiatal Hernia?

I have a large HH. I’ve had it for 30 years or more (I’m 76) but it is getting larger. My last CT Scan for my PF mentioned how large it is. I never have relief from it my food takes forever to go down, my chest and throat burn constantly sometimes I spit up liquids and my stomach is always swollen. It’s very uncomfortable. I have an…

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]]> 68f2aab8cdcfa60f775d51c8b3985ecc Sis replied to the discussion Prednisone Reduction and low oxygen in the forum Using Our Forums https://pulmonaryfibrosisnews.com/forums/forums/topic/prednisone-reduction-and-low-oxygen/#post-36727 Wed, 06 Mar 2024 08:37:57 -0600 Reply to Prednisone Reduction and low oxygen

Hi Janie. Since you mentioned watch your blood sugar I thought I would throw in a concern of mine. I was diagnosed with PF August 2023 but know I have had it longer because of the symptoms I had. I take 100 mg of OFEV twice daily (with no side effects) and 20 mg of Prednisone. I also have type 2 diabetes which the Prednisone drives my blood…

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]]> 00760123dd86262df6a27fdf83f4a29e Sis became a registered member https://pulmonaryfibrosisnews.com/forums/activity/p/40487/ Thu, 12 Oct 2023 13:20:46 -0500 0