Pulmonary Fibrosis News Forums | Shawn S Fahrer | Activity https://pulmonaryfibrosisnews.com/forums/members/ssfahrer/activity/ Activity feed for Shawn S Fahrer. Fri, 24 Apr 2026 23:56:40 -0500 https://buddypress.org/?v=2.20.0 en-US 30 hourly 2 07e91a2b5e03cb38cfb3cad4ad0593e7 Shawn S Fahrer replied to the discussion Vaccinations and IPF in the forum Healthcare Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/vaccinations-and-ipf/#post-39443 Fri, 24 Apr 2026 22:07:52 -0500 Reply to Vaccinations and IPF

You might be a candidate for pirfenidone (it comes in a GENERIC FORM now) instead of OFEV. Ask your pulmonologist if this drug has any potential for you….

]]> 3600a2bd71aac76ccbf7a2e0c22acd4f Shawn S Fahrer replied to the discussion Have you considered becoming an organ donor? in the forum Lung Transplantation https://pulmonaryfibrosisnews.com/forums/forums/topic/have-you-considered-becoming-an-organ-donor/#post-39442 Fri, 24 Apr 2026 22:04:28 -0500 Reply to Have you considered becoming an organ donor?

No — for the simple reason that my organs would be in too much of a state of disrepair for anyone else to use.

]]> c15f905ebf87e626c869cde5619e1465 Shawn S Fahrer replied to the discussion POC rental for airplane in the forum PF Communities https://pulmonaryfibrosisnews.com/forums/forums/topic/poc-rental-for-airplane/#post-39441 Fri, 24 Apr 2026 21:56:44 -0500 Reply to POC rental for airplane

I don’t even have the manual for the units (portable and standalone) that l have now. I found the manual for the standalone (BIG unit) on the internet — I still haven’t found the manual for the Rhythm Health Care P2(E6?) any place — not on the Apria website (Apria is my DME provider for oxygen supplies), nor any place else.

]]> 0b742895ff34639d9c388156eea9f0ff Shawn S Fahrer replied to the discussion What questions do you have about living with PF? in the forum Healthcare Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/what-questions-do-you-have-about-living-with-pf/#post-39440 Fri, 24 Apr 2026 21:47:13 -0500 Reply to What questions do you have about living with PF?

I would NEVER stop a medication FOR ANY REASON while on vacation. I know that with pirfenidone (OFEV’s competitor in the IPF space) any break of 14 days + would mean that you would have to ramp up to the full dosage ALL OVER AGAIN as if you were starting from the beginning (1 X 267 in week one, then 2X 267 in week 2, then 3 X 267 in week 3…

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]]> 3c95ad0adcbde2dacc4772092c80bad1 Shawn S Fahrer replied to the discussion POC rental for airplane in the forum PF Communities https://pulmonaryfibrosisnews.com/forums/forums/topic/poc-rental-for-airplane/#post-39439 Fri, 24 Apr 2026 21:37:55 -0500 Reply to POC rental for airplane

My oxygen unit is NOT an Inogen: it is from RHYTHM HEALTH CARE (either the P2 or the P2 E6: I am not even sure which unit I have other than I know it’s black) — and only lasts about FOUR HOURS per charge (when the charger is not plugged into the unit) on 2 L / minute (my current oxygen amount when I am on the go). I would have to have the…

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]]> 77316615f5c1c9f8d661e627c7d08657 Shawn S Fahrer posted a new activity comment https://pulmonaryfibrosisnews.com/forums/activity/p/47081/#acomment-47087 Fri, 24 Apr 2026 21:26:13 -0500 Life is a DAILY STRUGGLE with IPF. I don’t have the “pulmonary therapy” you do. What does it entail?

In reply to - DMH posted an update

With pulmonary fibrosis being new to me, I am hoping someone can help me understand the breathlessness. Is this something that you get used to or you will always struggle with? To my […]

]]> 5b83ea08b28ec1e1c34a1883be101720 Shawn S Fahrer posted a new activity comment https://pulmonaryfibrosisnews.com/forums/activity/p/47082/#acomment-47086 Fri, 24 Apr 2026 21:23:50 -0500 I even had trouble with my new DENTIST when I told him that I had pulmonary fibrosis. I had to have both of my pulmonologists sign permission forms for him to either just give me a cleaning or fill some cavities. You probably did NOT get IPF from the surgery (but recently picked up a bug that make your lungs go into fibrosis — like…

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In reply to - Ron Price posted an update

I wonder if anyone ever heard of getting Pulmonary Fibrosis from being on a heart/lung machine for heart surgery? My chest xrays were normal until I had the surgery.then I was told I have Ipf

]]> a0b4aac1b365b84890efbae3aea8f7f5 Shawn S Fahrer replied to the discussion Boehringer Ingelheim 1015550 fibroneer study in the forum Treatments and Science https://pulmonaryfibrosisnews.com/forums/forums/topic/boehringer-ingelheim-1015550-fibroneer-study/#post-39438 Fri, 24 Apr 2026 21:14:26 -0500 Reply to Boehringer Ingelheim 1015550 fibroneer study

You are lucky that you had no problems. One of my pulmonologists (I am up to THREE) wants me to consider JASCAYD (its brand name). Boehringer-Ingelheim has also put out Arikayce (which I was supposed to go on in some kind of ongoing trial to reduce my production of mycobacterium avium complex), but I rejected it (at the last minute) when I…

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]]> edd39d14c1eb08ffc5ce74018e31d7cf Shawn S Fahrer replied to the discussion Taking Esbriet and Ofev at the same time. in the forum Esbriet (Pirfenidone) https://pulmonaryfibrosisnews.com/forums/forums/topic/taking-esbriet-and-ofev-at-the-same-time/#post-35250 Wed, 21 Jun 2023 05:43:39 -0500 Reply to Taking Esbriet and Ofev at the same time.

You will be told by your doctor to go on either one OR the other. Since (under my insurance plan), the generic form of esbriet (pirfenidone) is ~ $80 per month (while the non-generic Ofev can run into the undreds of dollars per month if not more, even if you ARE insured since it is still VERY EXPENSIVE), you will be probaly told to… Read more

]]> 4f7df2b42cfe30db3e44258cc12df9ba Shawn S Fahrer replied to the discussion Ventilator Settings Question in the forum Welcome Lounge https://pulmonaryfibrosisnews.com/forums/forums/topic/ventilator-settings-question/#post-35249 Wed, 21 Jun 2023 05:37:08 -0500 Reply to Ventilator Settings Question

The difference is simple: let’s quickly divide 25 / 40: this equals 62.5% ‘efficiency’ — while this may NOT be his oxygen saturation (because if it was, he’d really be in trouble since normal saturation is 99 and even 90 — my baseline — has raised the eyebrows of my PCP), it’s still quite bad. In other words, what is being put in (by… Read more

]]> 7750b385a191c3ac48cb908488e44a3c Shawn S Fahrer posted a new activity comment https://pulmonaryfibrosisnews.com/forums/activity/p/36949/#acomment-37088 Wed, 18 Jan 2023 20:53:57 -0600 So am I.

In reply to - Shawn S Fahrer became a registered member ]]> ec6d98709685a6db948b7d63f9fb6799 Shawn S Fahrer replied to the discussion Why do IPF patients lose weight and how to help in the forum Welcome Lounge https://pulmonaryfibrosisnews.com/forums/forums/topic/why-do-ipf-patients-lose-weight-and-how-to-help/#post-34193 Wed, 18 Jan 2023 20:52:54 -0600 Reply to Why do IPF patients lose weight and how to help

It may not be the sugar that would be a problem — it’s the caloric content vs nutritional content. Unless you are 1) rather thin NOW and 2) relatively active, I can’t recommend them except as a meal REPLACEMENT once in a while — not daily. Since with IPF, it’s normally hard to exercise, any weight gain may wind up in the places that can lead… Read more

]]> 57d586c814282fbc8e14983eb7968e59 Shawn S Fahrer became a registered member https://pulmonaryfibrosisnews.com/forums/activity/p/36949/ Fri, 13 Jan 2023 14:27:26 -0600 2