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@steve-dragoo
@kristina Hi Kristina – Sorry for the long delay but I could not get into the forums using FB.
I am fine, my wife nursed me through a bad time last year and of course, this lovely disease is taking its progressive course. I am encouraged by a couple of posts that show we might be in for help once a couple of trials clear. We both got our […] View
Friends
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- "I’m sharing the sad news that our amazing forum member, Chuck Harrison passed away late October. His wife Rose reached out to me to let me know, thanking all of us for supporting Chuck on this platform. May he […]"View -
- "Does anybody in the group had any experience or feed back on Wei institute mode of treatment? please share any experiences, etc you have, because i gave them a call for info, and the Soup ,A, B, etc will cost […]"View
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- "@drandyhall Andy, I have begun my laser therapy (6 sessions). The chiropractor is one you recommended. Thank you. He uses a K-Laser, Class 4, but does not get insurance coverage. I am also pursuing physical […]"View -
- "I just want everyone to know I have been on Micophenolate Mofetil after having tried and faile on the recmmended medicines. Now for two years there are no side effects and my coughing has diminished by85%. I also […]"View
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- "Hydrogen Therapy. I’m a 78 year old male, with severe IPF, diagnosed in January 2018. I’m on Esbriet and oxygen. I’ve been told that breathing hydrogen or drinking hydrogen enriched water is beneficial for many […]"View
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- "Your local pulmonologists tells you when you should use your oxygen. Your COE pulmonologist says different. Has this happened to other people? It makes it confusing for the patient."View
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- "Hello forum members, Tuesday is the day for my forum topic to be published. I’m going to go off script today and just ask one simple question: What does a good day look like for you? So many of us have e […]"View -
- "I have 2 hepa filter machines in my apartment to clean the air. I decided to turn off both of them and see if they do make a difference. In a matter of minutes I knew they DID make a difference. I started to […]"View
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- "I was wondering about anyone that is doing or has done laser therapy for IPF? Can anyone tell me how the therapy has changed their disease for the better or no change? Also the cost as well as insurance coverage? […]"View
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- "@Charlene Marshall I am unable to reply to posts. What do I need to do? Everything seems to have changed."View
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- "Starting to sweat profusely. Had to have rotator cuff surgery and sleeping in my chair for comfort. It’s leather, but I put a lightwievht blanket on it. So I’m not touching it direct. Then during the night I wak […]"View
